Binyamin's Heart Surgery

Kurdistan, northern Iraq

Still needs $4500
Help Binyamin

Another Check-Up

Posted on Thu, 03/15/2018 - 02:30 by Coby van Wijhe
Today Binyamin had his pacemaker check-up. So Rebecca and I went to Sheba this morning together with Binyamin and his dad. Binyamin was happy and gave us a big smile. When we arrived in the hospital we could see the doctor straight away. That doesn't happen often so it was a good start to the day. The doctor is very dedicated to Binyamin and really makes a lot of effort to help him. The pacemaker check-up showed one shock over the last four days. Although it's far less then before, the doctor still wants to go ahead with the procedure of the injections in his vein in the neck. It was planned to begin today, but now now it's being postponed.
The doctor has sent different emails to other doctors worldwide for input in this case. Although the procedure is not unknown it's not often done for this problem and not on a young child. The doctor is therefore hesitant and wants to check with other doctors who have more expertise. We also had some problems with getting the new medication but after many telephone calls the doctor found a pharmacist who could help us. For the coming two weeks Binyamin will stay in the Jaffa house. There will be another check-up in two weeks time and the doctor will stay in touch with us. 
We are very thankful for such a good care and pray that the right decision will be made for Binyamin. 

Released Back to the House!

Posted on Mon, 03/12/2018 - 02:48 by Nate Geer

Binyamin got released to go back to our Shevet house today! Binyamin was very excited to see us and his dad was constantly asking when we would get to leave the hospital. Binyamin is very spunky and full of life, he always comes running up for a high five when he sees us. 

After a long day waiting at the hospital and fixing the ceiling, he was very tired and slept the whole drive back to the Shevet house. It took nearly the whole day to get Binyamin released from the hospital because of some specialty medications that he was on. That was OK though, it meant lots of time for selfies! 

This precious family desperately needs your prayers. The father is a mechanic in Kurdistan and Binyamin may need some of these very expensive cardiac medications for the rest of his life,  even if the operation is successful. But we serve a God who is so much greater, so please pray with us for complete healing in his young body.

Happy Chappy

Posted on Sun, 03/11/2018 - 20:38 by Coby van Wijhe

This morning I visited Benjamin and his dad. He was staying in the south wing. I met him while he was playing with Dad. He welcomed me with a big smile. It's so good to see him this way again. There was a talk about leaving the hospital today but they changed their mind. I spoke with Dr Shai. He mentioned that last Sunday Benjamin had four shocks from his pacemaker. They have decided to do the injection in his neck vein this coming Thursday. Benjamin will therefore stay in the hospital so they can keep an eye on him.

His father is a bit worried about this treatment but also knows that this is the only thing that's left to help him. Please pray that the injections will be helpful for his heart.

Going Strong!

Posted on Tue, 03/06/2018 - 16:59 by Maxine Stuart
Little Binyamin has been on my heart quite a bit lately. His situation is not good, and options slim. My Bible study group, other friends, and our Shevet team have been praying for him in earnest last night and this morning. Today we arrived to find a bright, happy and energetic Binyamin! He started trialling his new medication yesterday, and so far it is going well! He has not had to receive a shock from his internal defribulator for 2 days now. This is GREAT news! On the day he was rushed in to hospital, he had received more than 6 shocks in one day, and multiple shocks per day leading up to that.
He has been a bit bored in hospital, so today we gave him some Lego bricks, colouring books, and some clothes, as we have noticed he has been in the same set for a few days now. He is from a working class family, and it was good to be able to help them in a small way. Esther sat with Binyamin and his Dad for a while and reported that he enjoyed the Lego, and was happy and active the whole time. 
Praise God for this good news, and let's keep the prayers coming!

Doing Better

Posted on Mon, 03/05/2018 - 21:43 by Guest Blogger
I am a short-term volunteer from Denmark, and I'm lucky to be with Shevet Achim this week. Today Alex (also a Dane), Coby and I went to the hospital to visit four kids and their parents. We met Binyamin, and this strong little guy is getting better. Meeting Binyamin made me think a lot. It was hard to see how weak he was but even harder to see how sad and helpless his dad felt. God reminded me of a song I often sang when I was a child:  "He's got the whole world in His hands." As I saw Binyamin sitting in his wheelchair, I found some peace in this picture of God holding him in his big hands.
Binyamin started yesterday on a new medication. The doctor will first see if this medicine will be of any benefit before they will proceed for the ganglionectomy. Please pray that the medication will help his heart.
Written by Danish volunteer Sofie Poulsen

Admitted Again

Posted on Fri, 03/02/2018 - 22:13 by Coby van Wijhe
Dear Binyamin is back in the hospital. Yesterday when we arrived back in Jaffa after our visit to the hospital, Binyamin had several shocks from his pacemaker. I phoned his cardiologist and explained the situation. Binyamin had to be admitted to the ICU straight away. So together with Andrew we went to Sheba hospital. Soon as we arrived the doctor also came to check him. During his checks, he had two more shocks from his pacemaker. The doctor gave him medication to sedate him a bit so he could sleep and rest. The reason behind these shocks are still unknown. The doctor was phoning with other specialist about his bad situation.
Hopefully in the coming days a procedure of treatment will be put forward. Please join us in praying that it will be successful. It was just so sad to see this little boy in such pain and despair. Also his father's sorrow is hard to see. When I left the hospital, Binyamin was in peace and asleep. We really need a miracle. Please pray with us that God will heal the heart of this little boy.

Pacemaker Check-Up

Posted on Thu, 03/01/2018 - 03:28 by Coby van Wijhe
Binyamin had been at the house for a week since they placed the new pacemaker. It had been so good to see him flourishing again and also his father looks so much more relaxed. But last night he had two shocks again.
Today I took Binyamin and his father to the hospital for his pacemaker check-up. They also took the staplers out and we saw the doctor. In the meantime they offered us tea and bread and biscuits which was very kind of them. Because of Purim Binyamin received many sweets and little presents too.
The doctor checked the script of the pacemaker. He found it very strange that the shocks we're around midnight and just out of the blue. Together with the cardiologist Dr. Shai, we went to a professor to see what can be done about Binyamins very severe and rare heart problem. They discussed the problem and decided to do the ganglionectomy. Because of his young age they will first evaluate the feasibility of chemical treatment. An ECG was also made and the medication had to be increased. Next week there will be an evaluation on the medication. Father is aware of the difficult heart problem of his son. Benyamin is just such a sweet boy with a beautiful smile. 
I really pray that the Lord will interfer in his situation and that his heart will be health.

Back at Shevet

Posted on Fri, 02/23/2018 - 22:35 by Johanna Ebert

It was a crazy day, today. We had echo appointments in the afternoon for three of our Sheba kids and as we were almost there, we got a phone call that Binyamin would be discharge today.

But our car was already full with the other kids and so we were just able to pick Binyamin up after we brought the other kids home. It was around half past 7 as Binyamin was sitting in the car with a big smile in his face. Also the dad was very happy to come out from the hospital.

At the moment he get still medicine and in one week will be the next check. Then we will know if he need a second surgery or not.

Binyamin's New Pacemaker

Posted on Tue, 02/20/2018 - 16:14 by Coby van Wijhe
This morning Sophia and I went to Sheba hospital to meet Binyamin and his dad. They were already in another building for the operation. Today Binyamin was scheduled for the replacement of a pacemaker. When we arrived in the pre-operation room, Binyamin was still waiting to move onto the operation room. Dad was very pleased to see us. He joined Binyamin to the operation room until he got his sedation.
When Dad came back we went together to the waiting hall, had a drink, shared pictures, and talked about our families. After 2 hours the surgeon came and explained about the operation.
With this pacemaker and the change of medication they expect less shocks from the device are needed. After a few days and when he is stable they will discuss the need of another operation to solve his cardiac arrhythmias. With the ambulance Binyamin was brought back to the secondary ICU. Dad is so pleased and thankful for all the support. Binyamin and his father are very attached to one another. 
We are thankfull for a successful operation and pray that his recovery will be smoothly.

New Pacemaker Planned

Posted on Thu, 02/15/2018 - 01:11 by Jesse Tilman

Dear Binyamin is in secondary ICU and struggling towards health. The doctor said he is planning to replace his pacemaker on Tuesday next week. He also has Binyamin on a special medicine that we are checking on if it can be found in Kurdistan. 

His father is doing the best he can and bearing with the hospital life patiently for his son. We brought a little cheer and comfort to them today.