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The Heart Surgery of Younis

Thursday
August 9, 2007

Younis Flies Home to Iraq
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We were so happy to see Younis and Zhino back here in Jordan safe and sound after their surgeries and their time in Haifa. The mothers were full of praise for the friendliness and love of the hospital staff and the church. 

Younis is much more active now than when he first came here three months ago. Both children were welcomed back here by the neighbour children.

Younis’ mother is a little sobered by the prospect that Younis will need another surgery in half a year’s time, and most probably will need a heart transplant at the age of 25 years. They were wanting to go home so much, and this morning we left at 08:00 to take them back to the airport. We were glad that the new baby decided to wait a little while before coming, so it will be born in Iraq. This will make the paperwork MUCH easier. (Imagine an Iraqi baby with an Israeli birth certificate... not easy.)

Younis' mother and Zhino's mother say thank you to all of you from all of their heart!




Sunday
August 5, 2007

Getting Around
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The good news is, Younis has started to walk around more often nowadays, and he seems to enjoy it too! And today, he got to sit in a car seat when Abu Amir drove us over to his home for a visit. 

The Said family home has a great view of the Haifa port and we all spent a relaxing afternoon there, enjoying a delicious home-cooked meal and some lively fellowship.



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Thursday
August 2, 2007

Cereal,
and Tears

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Yesterday, both Younis and Zhino were officially discharged from Rambam Hospital, and are now back at the apartment in Haifa. They have a week to rest and relax till next Wednesday 8 August at 8am, when they will need to return to Rambam for their 'final' echoes before heading back to Iraq.

Although Um Younes seemed concerned that her son's cheeks and lips are not as pink as those of the other Iraqi children who have had their operations, Dr. Lorber emphasised that the procedures done on Younis have all gone very well, and that Younis' present condition is much better than when he first arrived at Rambam.

Besides, Younis' heart defects are complicated, as he has only one out of two vital ventricles. It is worthy to note that Younis' case was turned down by another hospital before being accepted by the Rambam medical team.

For now, Younis is doing very well in his recovery process and it  may be years before he will need another operation to treat his condition if it deteriorates or causes problems in the future.

Meanwhile back at the apartment, Um Younis is starting to train Younis to walk more on his own, as well as to eat a more varied diet. This morning, she gave him
some cereals, which he hesitantly ate as I took photos of him "in action". But after a few bits of cereals and a couple of photos later, it was "halas" (finished!) for him as you can see the cereals scattered all over the bed!





What Younis wanted next was his favourite item--yes, you may have guessed it-- bread dipped in "cha" (tea)! And when his mom pretended to dip his bread in the tea and fed him with it, he knew it the moment the food was in his mouth and he burst out crying!



Well, least Younis had some cereals today! Day by day, may he change his way of eating--and we continue to give thanks for every bit of progress this little fellow makes.

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Tuesday, July 31, 2007
Younis is Walking Out!
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Younis is fit to be discharged from Rambam Hospital and will be moving back to the Haifa apartment tomorrow.

Today, I encouraged Um Younis to let Younis, who is already 2.5 years old, start walking on his own again, instead of being carried about all the time. This is partly in preparation for the time when she will return to Iraq with a newborn baby, who is due in a week's time!

Um Younis has been rather protective both before and after Younis' operation, but today she was convinced, as her delivery draws near.

So she put Younis down from the bed and said, "Yim-shee, yim-shee" (walk, walk). At first, the toddler wouldn't move nor let go of his mummy's hand. But with Zhino's help and my comical coaxing, he tottered  his way towards me. I was snapping photos of his "first steps."

Younis loves to look at his own photos and video clips on my camera, and this is one sure way to get him to perform!

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10:30 p.m., Thursday, July 26, 2007
Younis' Uncle Killed in Blast in Iraq
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I’ve just received a telephone call from Um Younis, who is still at the hospital with her son, that her brother-in-law (her husband’s brother, or Younis' uncle) was killed in a blast in Iraq. He was a newly married young man. Um Younis' husband and the family back there are devastated. Um Younis is crying all the time. She told me that her husband is asking her not to come back to [their hometown, which can't be named for security reasons] because it is very dangerous.

Please pray for her and the family.


Thursday
July 26, 2007

CT Results Show No Fluid on Brain
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Younis is still making good progress. The CT scan shows that his head is fine. Today he enjoyed a nice visit from his friends. Please keep praying for him, for complete recovery. You know that when “God begins a good work he will carry it on to completion…” (Philippians 1:6)
.

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Wednesday, July 25, 2007
Official CT Report Tomorrow
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In just over two weeks, Younis is now more familiar with the hospital environment and some of the necessary procedures, so much so that he did not make any fuss when he was wheeled over to another part of Rambam to get his CT scan.

Dr. Shirley said that the initial observation from the CT scan seems to show that everything is okay with Younis, but we have to wait till tomorrow before we can get the official report. There had been some concern that there may be fluid accumulated in Younis' head, and that was why the CT scan was required.
 
Younis' oxygen level was great today -- from yesterday's low 80's (even with the oxygen mask on) to nearly 100% today. He has now mastered the art of talking and smiling for the camera with the oxygen mask on!

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Tuesday
July 24, 2007

CT Scan Needed
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Younis was scheduled for a CT scan today, to check for fluids in his head.
But it had to be postponed till early tomorrow, as he did not fast at least four hours before the appointed time today. The CT scan was ordered because the doctors need to confirm if Younis' large head is due to the presence of fluids which, if accumulated, could put pressure on his brain and cause other problems.

Meanwhile, Um Younis is rather concerned that her son's condition seems erratic -- he's feeling good one day, and then down on the next. We had to assure her that since Younis has undergone a major operation, it may take a while for his body to get adjusted and for his condition to stabilise. A nurse said that his wound is taking a bit longer to heal, probably because of the lack of vitamins in his preferred diet of bread, cake and milk.

Nevertheless, Younis has no lack of entertainment while in the hospital. He has a bag full of toys, which incidentally includes the oxygen mask and the rubberised sensor.

And when he is too tired to sit up, he even plays wth his own ear!

His dad calls from Iraq several times a day, and Younis gets his share of chatter on the mobile too.  (See photo at the top.)

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Sunday, July 22, 2007
Infection on Chest Wound
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Younis has an infection on the surgery wound down his chest. The attention given to it seems to give him a good excuse to be fussy. He was a little weepy. Then Younis broke out into shy smiles when I showed him video clips of Zhino and Omar having fun at the beach and at a neighbour's birthday party.

Younis' post-surgery recovery is good. However, he will need a dose of diuretic medicine to drain excess fluids from his body. Dr. Lorber explains that Younis is "puffy" with fluids because of too much salt in the food he eats. He has strongly advised Um Younis to cut down on "Bamba" and potato chips.

Back in the ward during lunch-time, Younis said "Nah!" (No!) to the cake he was eating... and almost the very next moment, he wanted it again. :-)


Both mother and child need our prayer!


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Wednesday, July 18, 2007
Recovering in the ICU After Successful Surgery
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Younis' operation this morning was successful, praise the LORD! Cardiologist Avraham Lorber, who has arranged for the surgeries of Iraqi children at the Rambam Medical Center in Haifa, reports good post-surgical oxygen saturation and expects that recovery will be swift.

On hand to offer emotional support today was Um ("mother of") Omar, pictured below at right.  She's a veteran of this process following her own son's surgery two weeks ago, and she accompanied Um Younis into the ICU to see Younis after he was settled in after the operation.

Seeing her son on a mechanical ventilator with all those tubes and paraphernalia stuck to his little body, Um Younis was understandably worried. And when Younis seemed to choke as he coughed, the concerned mother was in tears!

But the medical staff assured us that a little coughing is quite normal. As the patient gradually awakens from his sedated state and realises there are
objects stuck to his nose and body, he tends to struggle to get these things off him.

Just as expected, the coughing soon subsided. Um Younis' fears were further allayed when Pastor Philip Saad from the Haifa church explained to her in Arabic what are some of the common post-operation symptoms.


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Tuesday, July 17, 2007
Praying for Younis on Surgery's Eve
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Um ("mother of") Younis came forward at our church meeting to ask for prayer on the eve of Younis' surgery scheduled for Wednesday. It was a great time of worship. The title of the message was Jesus the hope of the world!

Younes was admitted today for his surgery tomorrow.   Doctors have decided to perform the Glenn surgery, which is the definitive repair of his heart defect, rather than treating in stages through multiple surgeries.

Please pray for mercy and grace over this precious child. Pray for Um Younes who is very pregnant, she is in the 1st week of her ninth month.



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Thursday, July 12, 2007
Today's Catheterization Was Successful
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Just after 10am this morning, Younis was wheeled out of the operation room and Dr Khoury and Dr Lorber reported that his catheterization was successful. Younis will be scheduled for an operation next Wednesday, and this is part of the phase by phase treatment which the Rambam medical team considers best for him.
 
Nevertheless, the doctors reminded us that we should not be under the illusion that everything is now okay, because Younis' medical problem is very complex. Much depends on how Younis progresses with each treatment, and as he grows, he will need further operations in the future.
 
Younis was wide awake when he was brought back to his bed, where he was soon visited by Omar and Omar's mother. It was very comforting for him to see familiar faces around.
 
Younis fretted as he had an oxygen mask over his face, and the machine indicated that his oxygen level was in the 70's. But after a while, his mother obliged him by removing the mask, even though the readings dropped to the 50's and low 60's. An above-90% oxygen saturation is considered good, but for patients with heart problems, the 60-70% average is acceptable.
 
Although the nurses advised against drinking anything but water, Younis insisted on having his milk. Again his doting mother obliged, and for the first time since I met this little boy a week ago, he actually finished up his feed! Well, if Younis' appetite improves, that is surely a very good sign!


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Wednesday, July 11, 2007
Catheterization Tomorrow
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About 9.00 pm last night, after I sent off my reports for the blogs, I returned to the ward to check on Younis again. It was his first night at the hospital and he was crying fretfully. But when his mum noticed that I had walked into their darkened room, she pointed in my direction, calling out my name… and Younis’ “hek-hek-hek” cries turned into “herr-herr-herr” laughter. Indeed, it was very gratifying to know that my familiar face can console this 2.5 year-old.

Today, Younis had bread dipped in lentil soup for lunch, besides having his cha (tea). Neither he nor his mum wanted to eat the humus, nor the couscous served with boiled carrots and cucumbers.  So I scoured the food cart and found some more bread and a whole slice of cheese for them.

Do pray for Younis' mother to be willing to try eating different food, as Younis seems to be quicker to say “nah-nah” (no, no!) to food which he sees his mum turn a nose against without even first tasting them. Both the child and his pregnant mother need to eat well.

Younis will have his catheterization done tomorrow morning (Thursday, 12 July).

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Tuesday
July 10, 2007

Younis Admitted
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Due to an unforeseen mix-up at the hospital, Younis and his mother had to wait most patiently for over three hours at the Rambam Hospital before they could proceed with the registration and check-in.
(There were two donors to two different children: our Younis,  and another child named Yunis!) Nevertheless, Younis had a great time playing with the toys in the waiting area, and even had a short nap.

As of today, Younis weighs 11.765kg and is 85cm tall. He was eventually checked into the same ward as Baby Sam and Omar, the other two Iraqi boys who already have had their operations. Younis seemed comforted to see his Iraqi friends at the hospital, and kept pointing to Omar, indicating to me that he knows the elder boy. Then there was the changing of shift of the hospital staff. By the time Younis was finally assigned his bed, it was close to 5pm. When I waved goodbye to Younis, he cried and didn't want me to go. But I had to get this report sent out, so I promised I'll see him again tomorrow morning.

Last night, while I was talking with the Iraqi mums in the apartment (in simple two- to three-word phrases illustrated with signs and gestures), Younis' mother suddenly drew our attention to Younis’ soliloquy chatter. Her son was actually calling out, “LC, LC!” All of us were amazed and I was especially delighted. I seized the opportunity to ask for a kiss from this previously shy and sullen little fellow, and he immediately obliged.

As I was recording Younis’ new vocabulary, Zhino wanted to join in the fun. When I reviewed the recording with the Iraqis, everyone squealed with laughter and both kids started to bob up and down on the mattress. So more recording was done to archive this joyous mood--a very good prep for Younis’ admission at Rambam the next day.

I’m thrilled that Younis has warmed up to me so well and so quickly over the past three days. Now I’m one more friendly, familiar face he’ll see at Rambam, which is a totally strange environment for this boy. Younis' mum is also much more relaxed and happier now that it is easier to please and entertain her little boy. Thanks to all of you who prayed for Younis and his mum… and I’ll say I’m a most grateful beneficiary of the changes which the LORD has worked in their heart and spirit.

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Sunday
July 8, 2007

Heart Located on Right Side of Chest
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Now fully recovered from chicken-pox, Younis had his first check-up at Rambam this morning. He wailed when he had to be undressed to be weighed and wired up in an unfamiliar environment but the very experienced Staff Nurse Haya soon calmed him down. After his little ordeal, he was rewarded with a sticker which says, “I’m a brave boy.”


Dr. Khoury briefed us on Younis’ serious heart problem: his heart is located on the right instead of the left of his chest, and he has one ventricle missing on the left. Eventually, he will need a heart transplant but for now, the Rambam medical team will do their best to alleviate his condition. The first stage of treatment will begin this Thursday, when Younis will have his catheterization done.

Younis’ pregnant mum took in all this information rather well. She is apparently quite relieved to have Younis begin his treatment as soon as possible, especially so because the baby inside her is getting more and more active, and we are concerned that under the stress she’s been going through, she might deliver prematurely!

By the way, I’m pleased to report that Younis has started eating a more balanced diet, instead of the tiny sips of his milk and some bread dipped in cha (tea). Yesterday was a day of breakthroughs – Younis allowed me to carry him for the very first time, when we went for a walk by the beach (see Zhino’s blog)! So far, this little guy can only be touched by his mum and Um Zhino, the other Iraqi mum staying in the same apartment. 



Younis also ventured to walk a bit on his own, instead of being carried all the time. He gave a most adorable smile when I praised him, “Younis, barsh (good)!” As he warmed up to me, I managed to get him to try eating new food, such as watermelon, multigrain bread and some veggies… but only if fed these by his mummy.

Please pray that Younis' mother will persevere to coax her boy to try a variety of food, as he needs to build up strength for the days ahead. Younis will be admitted into Rambam on Tuesday, and his catheterization will be carried out on Thursday, 12 July.

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Thursday, July 5, 2007
Settling In
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At 5.00am this morning, Bushra (Younis' mother) knocked on my door asking for a light for the stove to heat up some water for Younis’ feed. The lighter didn’t work and there was not a match in our apartment. In desperation, Narmeen (Zhino's mother) and I rang the bell next door. We knocked and called out our neighbour’s name for a good 10 minutes before her sleepy husband came to our aid with his lighter. Younes had his warm milk and everyone went back to sleep, till almost 11am!


While the Iraqis were still asleep, I rummaged thru my jute-bag for toys for Younis and Zhino. I was well rewarded when Younis’ face brightened up into a wide grin – his first happy face since I met this solemn-looking young lad two days ago.

While I was out on errands, Ziham our kind neighbour brought lunch over for the Iraqi families. The home-cooked meal (no more sandwiches today, please) did wonders for Bushra and in the afternoon, she received a very pleasant surprise -- a long-distance call from her brother in Canada.

To add to her joy, the lady next door gave her a thermos flask, so that she need not boil water at 5.00am from now on!

Such are the highlights of the day for a pregnant Iraqi mother and her toddler waiting in an apartment in Haifa for his turn for a much-needed heart operation.

PS: Amendment: Younis is 2.5 years old and not 1.5 years old as I had mistakenly reported in yesterday's blog. Yup, I did think he was a rather big baby... until I heard him speak quite a bit to his mum when I was out of his sight.

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Wednesday, July 4, 2007
Younis Finally Reaches Israel
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Pictured above: Shevet driver Simantov, Zhino and her mother, Shevet worker Lee Liang Chian, Younis and his mother, and Shevet staffer Jenae after their arrival in Israel

Today has been a long and tiring day for both Younis and his mum, as they were brought over from Jordan to Haifa, Israel. They were on the road after breakfast, with about an hour and a half of rest in Amman, and it was back on the road again. Fortunately, the border crossing was relatively smooth although it still took over two hours for all of us (including Zhino and her mum) to clear the security checks.

I found out last night that Younis’ mum is six months pregnant with her second child! So it has not been easy for her to handle her fussy one-year-old who isn’t too keen to interact with anyone other than his mummy. Hopefully, Younis will open up more once I (LC) get my hands on my bag of toys which I’ve left behind in the apartment in Haifa.

Simantove drove the Shevet van to the terminal to meet us. While loading up the luggages, I took a couple of photos but within minutes, the security people came and made me delete them from the camera.  Sorry, no photos of the crossing of Younis and Zhino into Israel!

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Tuesday, July 3, 2007
From Chicken Pox to Heart Surgery
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One-and-a-half year old Younis has recovered from chicken-pox, although his little face still bears marks from his ‘battle’ with the virus which delayed his travel to Israel for his operation. And tomorrow, he will cross over to Israel where he will wait his turn to be admitted into Haifa’s Rambam Hospital.

In the past several weeks, Younis and his mum, who is pregnant with her second child, have been staying at the apartment where Shevet’s Jordan coordinator Dirk and his family live.

Do keep Younis and his mum in prayer. This is the boy’s second chance to be operated on, as his case was considered too complicated and was previously rejected by another hospital.

 

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Tuesday
June 5, 2007

Younis, 3 Others to Arrive In Israel Tomorrow
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Younis and three other Iraqi patients will travel to Israel from Jordan on Wednesday, in preparation for heart treatment at the Rambam Medical Center in Haifa.

Younis seems to be the most sick of them all. You can see the blue around his lips and he finds it difficult to walk,
although he is two years old. His mother is four months pregnant. The family is very thankful that they have been accepted
for surgery, since other hospitals classified him as "non operable." So please keep him in your prayers.

We'll update this page with more details after Younis and his mother arrive in Israel.

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Our name Shevet Achim is taken from the Hebrew of Psalm 133:  How good and how pleasant for
brothers to dwell together in unity... for there the LORD commanded the blessing--life forevermore.
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