Delir's Heart Surgery
Thursday, May 14, 2008
Delir's Family Welcomes Us In Their Home
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One
of the first families we had opportunity to see on our recent visit to
northern Iraq was the family of little Delir. They welcomed us into
their happy home with great
joy, and the feeling on our part was mutual. His thankful parents have
called repeatedly over the past 15 months to express their gratitude
for helping their son, and so that "Delir could say hello." :-)
Delir came to the October 2007 screening as one of the most urgent
cases, going straight from the airport to the hospital for oxygen when
they entered Jordan for the admission to Israel for surgery, and
needing a big tank at the apartment for Delir to use as needed. After a
few days, when the visa was released for the families to travel, Delir
was admitted upon arrival to Wolfson Hospital, having surgery within
days - just in time. Praise God, he is now a healthy and happy 3 1/2 year old. By looking at him, you'd
never know he'd been sick. He was running in and out of the room and
the house, playing with cousins and neighbors while we were there.
During Delir's surgery and recovery in Israel we were great friends,
but when it came to saying hello while I was at his house, he was
extremely shy! Only after many hours together would he look at the
camera for a photo.
His parents
and other family members were wonderfully gracious to us, and had
contacted other families we'd helped so they too could come and visit
with us. We had opportunity to see both Diyar and Aryan
in Delir's home, all of us rejoicing together in what God had done for
their children. Just before we left that evening, we also found out the
Um ("mother of") Delir is expecting another baby, and in fact they
should be celebrating the event in the coming week or two. We left them
that evening with yet another reason to thank God for His grace to
their family.
Sunday, January 13, 2008
Delir Leaves Israel
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After several weeks of follow-up echos for Delir, Hussein and Diyar,
they were dismissed from Wolfson and the Save A Child's Heart house
today to begin their joyful return to their homes and families. Each of
these three boys came over as urgent or emergency cases, and are going
home with new hope for a life and a future. Not only does this show on
their faces, but it also shows on the faces of their grateful mothers.
Really, everything about their lives has changed with this opportunity
to come to Israel for the heart surgery they needed. Today was a
celebration of the relationships made along the way, the encouragement
from completed cases to arriving patients, the emotion of saying
goodbye to friends made while sharing a very unique journey during
which they all shared a bond of understanding others could never know.
The
return to Iraq began with saying goodbye at the Save A Child's Heart
house. Although the picture may look chaotic, the reality on the ground
was that all of the women wanted to say goodbye to these three mothers
and children who had reached the goal - well enough to go home at last!
Hugs and tears were everywhere among us.
From the Save A Child's Heart house, we went to the hospital to say goodbye there. Hussein and Mustafa
and their mothers had been together since the screening in Amman in
early October, and had become very good friends. I watched as they
parted, Hussein's mother both comforting and encouraging Mustafa's
mother - this dear woman who had been so full of fear before, now
nearly aglow with confidence in Mustafa's success after his second
surgery. It was a sweet scene to me to see one able to help the other
in time of need. And these women do this so beautifully.... the
previously vulnerable ones becoming the strong encouragers.
Next
we drove to Jerusalem so the families could see the Temple Mount and
Garden Tomb. We shared some lunch, and though just a few weeks ago we
were able to to in the afternoon, today were too late to catch the
window of time when the area is open to all faiths, so we walked
through the Western Wall plaza to the gate nearby where our guests
could go and pray to thank God for their child's health.

Afterwards
we drove to the Garden Tomb only to find it closed because it is
Sunday. I realized as we set out on that walk that Diyar had been
walking all this time and keeping a pretty good pace... Praise God!
When he arrived in Israel he could not walk across the room without
needing oxygen! Having accomplished our purpose for passing by
Jerusalem, we left for the Jordan border.
God faithfully
answered our prayers about the timing of our arrival on this very full
day. Three of our Shevet efforts were converging at the Israeli-Jordan
border early this evening, and it was my prayer that no one would have
to wait for a long time for any of the others. With God's help, our van
of departing patients arrived at the same time Dirk brought three new
families from the Jordan side to enter Israel for their surgeries.
Since two of the new patients were going to Haifa, we had another van
there to drive those families to their new host homes. We brought Rebar
and his mother here to Jerusalem, and Dirk took the three families
going back home to Amman to await their flights. Security in the
Israeli terminal allowed us to work through the slight wait we had
while the new patients finished clearing customs on the "Arrivals" side
of the terminal. This allowed the new families to meet the ones
departing with new hearts - what an encouraging way to begin their stay
in Israel!
As we walked Hussein, Diyar and Delir and
their mothers to the bus which would take them with Dirk over to
Jordan, there were many thanks to God and to us as representative of
Shevet Achim for helping them come. They said to thank the doctors and
the Save A Child's Heart house staff. They are different women now,
having experienced a new land and culture, endured the trial of their
child's surgery and recuperation, and grown as they've persevered and
encouraged each other to do the same. Your prayers have helped carry
them through every step! Please continue to pray that they will
understand that the God of love has been there as well, for each and
every one of them.
Click
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message to Delir's mother.
Notify
me when Delir's page is updated
at
this
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Thursday, December 27,
2007
Building Strength
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The day before Christmas I had a chance to
visit with the families at the Save A Child's Heart house, and it was a
wonderful time together. I had not seen Delir since his dismissal from
the intermediate ICU, and when I walked in, I found him in a stroller
enjoying the activity of all the children around him. He was shy for
only a minute, and then enjoyed both the attention and the camera.
Hearing him laugh was a treat as we played together while lunch was
prepared. After the meal and after we all shared tea, Delir's mother
was thrilled to show me his progress at walking. He is building the
strength in his legs, and doing a great job walking almost without
assistance. All in all he was delighted with whatever he was doing, and
whatever was happening around him as well.
Here's a video clip of Delir
walking--click the arrow to watch.
His
mother is full of thanksgiving to know that soon she will be able to
take her son home to Iraq again. Thank you for praying for this mother
and son, and joining us as we watch God at work in their lives.
Click
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Notify
me when Delir's page is updated
at
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Tuesday, December
18,
2007
Fluid in Lungs; Release
from Hospital Delayed
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I visited Delir today, and had a chat with
the nurse. She said he has some fluid and so he is recovering very
slowly.
Delir's
mother was ever so thankful for the visit, especially because she had
hoped to leave the hospital late last week.
Click
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message to Delir's mother.
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me when Delir's page is updated
at
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Wednesday,
December
12,
2007
All Set to Leave the
Hospital
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Barely
two weeks have passed since Delir had his operation, and today, he is
all set to go to the Save A Child's Heart house tomorrow. That is where
he will rest until his next echo-cardiogram appointment which will
confirm if he is fit to be released to return home.
It
was
so heart-warming for me to see Delir smiling when I approached him,
instead of looking away shyly as he used to do. He is definitely
feeling great, and confident about himself, after his operation! How I
wish I could have more time to play with him, now that he seems more
open to relate to me... but I'll get to see him one last time tomorrow
when I visit him and the other Iraqi children staying in Azur before I
head for the airport to take my flight home.
His
mother
kept thanking GOD for her son's recovery, and she was delighted when I
handed her some photos taken of Delir on the day when he arrived at
Wolfson, of him after operation, as well as the recent photo of him
eating Haw flakes! Praise GOD for this opportunity to meet with this
family, and may they know Delir's ultimate Healer in a more personal
way in time to come.
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message to Delir's mother.
Notify
me when Delir's page is updated
at
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Tuesday
December
11,
2007
First Smile on Camera
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We were blessed today with one of
Delir’s first smiles for
the camera. We actually got him to smile by pretending to eat his candy
bracelet (truth is I really wanted a bite). He
has finally been moved out of ICU and is resting more comfortably in
the children’s ward.
Click
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Notify
me when Delir's page is updated
at
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Sunday
December
9,
2007
Eating Bread, and Haw
Flakes
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Delir
has two of three tubes removed from his body and is now in the
intermediate ICU. He was happily tearing bits of bread and eating some,
when I visited him this afternoon after attending to Rayan and Tara before
they left Wolfson after their respective appointments in the morning.
Delir's
condition is stable but there is a wee bit of fluids in his body where
there should not be, and once this is cleared, he will be moved out of
the intermediate ICU into the children's ward.
I
asked in my broken Kurdish with pantomine language if Delir
has been eating well, and his mother smiled and said, "Humdillah"
(thanks be to GOD). I offered Delir some Haw flakes, for a change of
taste. (The Chinese believe that Haw flakes help whet a child's
appetite.) He ate some but somehow found it more entertaining to tear
the paper wrapper, break up the pieces of Haw flakes and after sampling
a bit, started to fling them away.
After
a couple of minutes of such wasteful liberty, he stopped when I
indicated to him by shaking my head and my index finger that it was not
good to do so. His mother spoke to him in Kurdish and I presumed she
was explaining to him what I was trying to tell him in my sign
language.
One would have thought that
this boy would shun my friendship after being "ticked off" but
surprise, surprise! He actually started looking at me sideways and
smiling too. So I got my video running and to my delight, when I
offered him my hand, Delir took it and our friendship was sealed. Now
that is what I call "Delir is making great progress"!
Not
long after, Delir was fretting for milk but his mother seemed reluctant
to ask the nurse for it. So I approached the nurse on her behalf and
that's when I was told that Delir's mother has been feeding him
continuously every time he whined. The nurse explained that this is not
good for him as he tends to regurgitate when he over-ate. The nurse
affirmed us that she would give him his milk when it is time for him to
feed again. About half an hour later, she kept her promise and Delir
had nothing to complain about. So it seems that indirectly, Delir is
being weaned off from eating only for comfort.
Click
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me when Delir's page is updated
at
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Friday
December 7,
2007
When Can These Tubes Come
Out?
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Little Delir was awake when we visited
him in the ICU today, and despite the angelic pose he struck at right,
he was soon realizing he was not very comfortable as he continues to
recover. His mother is still anxious over his condition, but the doctor
reports that he is doing very well. He still has the chest tubes
draining fluids post-
surgically, but as soon as they are
removed, he will be transferred out of ICU. They hope to be able to
remove these tubes in the next day if he continues to do well.
Asked
today how Delir is doing, his mother replied, "Thanks be to God." Click
the play arrow below for a look:
I had the pleasure of passing this news
to Delir's father this morning when he called from Iraq. He had his
supervisor speak to me in English, then an interpreter who could
understand both English and Kurdish translate for him. All this while
they stood in the middle of an oil field in Iraq -- another amazing use
of the blessings of modern technology! The boss was not aware of this
situation until he reached me this morning, and he said from the look
on Baba Delir's face, he was happy to hear the latest report of this
progress of his son.
Keep praying for this precious little
boy and his mother. He normally has a very good disposition, and is
responding well overall, but does cry as he experiences the pain of
recovery. His mother seemed more rested yesterday, and was able to
visit some of the other mothers when Delir fell asleep after his
bottle. Thank God for his continued work in these lives!
Click
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message to Delir's mother.
Notify
me when Delir's page is updated
at
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Thursday,
December
6, 2007
Still Stable and Resting
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Delir
was still stable and resting today when I visited him in the ICU.
Nothing new to report--which is good news for this early stage!
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Wednesday
December 5,
2007
Unstable This Morning, But
Resting Now
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The day began with a little difficulty
for Delir as he had to have a new tube inserted to drain the chest
fluids which accumulate as a normal part of open heart
surgery. Apparently he became very unstable this morning, and the
procedure was done to replace a blocked tube. When I arrived, he was
resting, but was agitated and couldn't get comfortable for a time. The
doctors did their rounds while I was there, and I couldn't get an
update from them until they were finished. I did ask the nurse for
information though, and she informed me about the problem, and said he
is stable now. As soon as I had the information, Delir's mother wanted
to know it, and I shared it with her the best I could since she speaks
mainly Kurdi. I could see from the monitor that all the numbers agreed
with the report I'd just been given. Delir remained somewhat restless,
and as the doctors continued their rounds, I decided to go check on Diyar's
progress towards his catheterization today.
I returned later in the afternoon to
find Delir awake and peacefully looking at his mother and his
surroundings. He was still sedated, but seemed to be able to focus on
her, and to hear and see me when I spoke with him. I had a chance to
speak with Dr. Alona, and she said that he is doing very well, and that
they are very pleased with the outcome of his surgery. They
are hoping to be able to extubate him in the next one or two days and
send him to the intermediate ICU or the children's ward. When I told
his mother this, she was very thankful. She wants me to keep her
husband informed by keeping all the current information on the
internet, since he is watching regularly to see pictures and updates of
his family here. Praise God for modern technology and what a blessing
it can be in cases such as this!
As I left I encouraged
Delir's mother to be sure to get some rest, as she seemed pretty tired.
Please pray for her to maintain the stamina needed to care for Delir as
he recuperates. Ask God to touch this little boy in such a way that
everyone knows it is because God loves them that Delir is doing so
well.... truly His lovingkindness endures to all generations.
Click
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message to Delir's mother.
Notify
me when Delir's page is updated
at this
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Tuesday,
December 4,
2007
Awakening To New Oxygen
Level
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Little
Delir was awake when I arrived at the ICU this morning, with his mother
by his side. He was resting comfortably, but when he realized he could
not move his arms (since they're restrained to prevent him pulling out
tubes and wires) he began to cry. This made him cough, which made his
oxygen level drop temporarily, which made the monitor sound out an
alarm. Diyka Delir ("mother of Delir") became very concerned about her
son, and began to cry too. The nurse came over and checked him,
rearranged him to a more comfortable position, and reassured his mother
that everything was OK. She said that Delir is doing very well. And
when Delir stopped coughing and crying, his oxygen level returned to
the beautiful figure of 99%. What a vast change from only five days ago
when he arrived with only 48% oxygenation in his blood! Thank God for
this improvement.
Please keep praying
for this precious
boy and his mother. He seems pretty alert already when he wakes up
although he is still sedated. He's had a miraculous life so far to
reach age 2 with his heart condition, and we pray he will also have a
miraculously quick recovery. Please remember also to pray for stamina
for his mother as she watches her son get better day by day.
Click
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message to Delir's mother.
Notify
me when Delir's page is updated
at this
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Monday,
December 3, 2007
Delir Comes Through Surgery
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Thank God! Delir made it
through surgery today and is now in the ICU at Wolfson recovering. It
was a long day for his mother, but she is more thankful to God than
ever for helping her son. Because there were other mothers from
Gaza around who have been through this
process, and her friend ( Diyar's mother) who she traveled
with from Iraq is there waiting for Diyar's
catheterization, Delir's mother stayed in their room in the ward for
most of the waiting period. But because a television crew was covering
the surgery, both of the mothers and I were able to get special
permission to wait just outside the operating room and
view Delir
as he came out and was transported upstairs to the ICU. When
Delir's mother saw that he was okay, instead of walking beside the bed
all the way to ICU, she was anxious to call her husband to tell him the
news. The medical team who walk patients from one place in the hospital
to the other walk hurriedly so the child will be reattached
quickly to the necessary equipment, and since Diyka ("mother of") Delir
was talking to her husband, she fell behind the rest of us. But again,
because there was a TV crew there, the mothers were allowed to go into
the ICU with Delir.

After a
relatively short wait, we too were allowed to go into the
ICU to see Delir, and I was amazed at how calm his mother
was. She checked on her son and looked around
at all the machines helping monitor his condition,  and then she opened her mobile phone
and took a video of the entire setting, beginning with Delir, panning
the machines and the room, and coming back to Delir again. She sent
this to her husband so he too could see how his son
was doing "real time."
After
a few more minutes, she came outside to wait. Before long the surgeon
Dr. Sasson came out to speak with her about Delir's condition. We were
all able to hear the information since there were cameras rolling...
and we were shocked to find out that just as he went into surgery and
was put under anesthesia, Delir had a cyanotic spell which was
an extremely dangerous and life-threatening emergency. That
was
the first thing they had to deal with, he said, and after he
was
stabilized again, they went on with the surgery. To illustrate
the
emergency nature of Delir's surgery, Dr. Sasson said that the opening
in Delir's aorta was only about3-4 mm in diameter rather than the
normal 14 mm, and he felt it was truly a miracle that Delir
had
survived to make it to the surgery.
Praise
God! We know it would not have happened except for
His care and keeping of this precious
boy! When I look back now at the fight for his visa last week
so he could travel immediately, I am filled with thanks again that
everything came together as it did. Dr. Sasson shared in the interview
with the news crew that he felt Delir had only days, or at most, weeks
left to live without surgery.
Later this
afternoon as we returned to Jerusalem I received a call from Delir's
father telling us (and therefore you are also recipients) thank you for
helping his son. I didn't count, but I think he probably said it 10
times, and I could hear the joy in his voice as he
spoke. In response, I thanked God for helping his
son.
Let
us pray for Delir's rapid recovery as a further testimony to the
miracle which we've seen so far. Pray for his mother to remain strong
as she helps nurse her son back to health -- Delir is expected to make
a full recovery, and grow up into manhood with a family of his own.
Click
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message to Delir's mother.
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me when Delir's page is updated
at this
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Sunday,
December 2, 2007
Delir to Surgery in the
Morning
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Today
brought news which was very good - Delir will have surgery in the
morning. His mother was very thankful about this, and maintained a
thankful disposition throughout the day. Along
with the pre-op attention of the other children, Delir was very sweet
throughout the day. He is a very curious and happy child all of the
time I've been around him. An echo was done this afternoon and Delir
was contented throughout the echo as well.
Please
pray for this sweet baby and his mother in the morning. Diler will go
to surgery around 7 am, which is 7 hours ahead of the east coast of the
US. Pray for his mother as she waits the long hours for her son's
return from the OR and sees him rushed into the ICU. And pray
for
his father back home, as we know he will be waiting anxiously after
returning to Iraq the same day we came over from Amman with his son.
Click
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Notify
me when Delir's page is updated
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Thursday,
November 29, 2007
Hospitalized Immediately in
Israel
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When I arrived at the
apartment in Amman this morning, I found all the families ready to go,
but noted that Delir's mother seemed not just ready, but relieved to
go. I greeted each person, and as we said hello, her response to me was
to thank me for getting her son to Israel, to the hospital today. As we
loaded the suitcases into the taxis, her husband told me how they had
to give Delir oxygen at 2 am and 4 am this morning. He too expressed
many thanks for what is being done for his son, and I want to be sure
that all of you who are reading know just how much your prayers and
donations mean to these desperate parents. As we left Delir's father
behind in Amman, these parents did not seem sad to part from one
another, but actually encouraged at what was finally unfolding before
them. His final comments to me, interspersed among many more
thank-yous, were an invitation of welcome to come to their home and be
their guest as a way to show their gratitude and the depth of
friendship this help portrays to them.
Delir was very quiet as
we traveled, sleeping part of the way to the border. He has already
made close friends of Diyar and Dilshad, so enjoyed Dilshad's company
while he was awake. After our arrival at the hospital many hours later
(click here for the full story
of the journey),
Delir was given the standard blood pulse oximeter test which showed
that his oxygen saturation rate was only 48%. Dr. Katz did an
echocardiogram (pictured above), and quickly determined that Delir
would be admitted
immediately. Again, I saw his mother react with gratitude rather than
anxiety over this situation. She knows how much her baby needs help,
and must feel somewhat like this is a dream as everything goes forward
for his surgery to happen soon.
I left Delir and his
mother late this evening along with Diyar and his mother who were all
awaiting completion of the admission process. Please pray for them to
rest well after a very long day. Pray for stamina and courage
for Delir's mother, and peace for Delir as tests determine his
readiness for surgery.
Click
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message to Delir's mother.
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me when Delir's page is updated
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Tuesday,
November
27, 2007
Delir, Needing Oxygen,
Reaches Amman
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Tonight
Jody and I went to the airport to meet the newest group of Iraqi
children and parents who will go to Israel for heart surgery, after
they were identified as operable at the echocardiogram screening last
month. This group includes 5
year old Dilshad, 17
year old Diyar and--the most urgent--2 year old Delir. It took over an
hour for them to clear customs and security, and then we saw them
coming into the terminal where we greeted each other with big smiles,
handshakes and traditional kisses hello. Although we had taken name
cards in Arabic so they would be sure to find us, we found we didn't
need them, as we all recognized each other immediately. I knew just who
to look for after seeing their faces regularly on their passport
pictures needed for their travel visas. It is a blessing to have them
here now those for whom we are laboring and praying.
Because
of the severity of Delir's condition, his father accompanied him and
his mother to Amman. This was also preferred by the other families so
that the women and children would not have to travel alone. He will
look after everyone until the mothers and children leave. This is in
itself a comfort for all of them as they find themselves on a journey
they've yearned for to get help for their sons, yet one which is filled
with unknowns and intense emotions.
As
we drove into Amman, little Delir opened the window multiple times and
put his face to the opening - this surprised me since it is rather cold
outside. At first I thought this was only a 2 year-old playing with the
window, but after the second time, I realized that he already knew he
needed the fresh air to help replenish his body's oxygen supply. His
mother lifted him to the window each time he opened it, and after a
little while, he seemed to be satisfied and didn't bother the window
again. This made me aware that we might need to check further on his
condition after we got home.
We had been
informed last night that little Delir had been going to the hospital in
Iraq for oxygen because the level in his blood had dropped about 20%
since the screening. So tonight when he began to open the window in the
van as we rode from the airport to Amman, I felt it urgent to ask the
parents more once we arrived at their apartment. After they ate, we
talked about his need for oxygen tonight. They shared that he has been
going every night or every other night to the hospital for oxygen, and
that yes, they could tell that he did need to have oxygen tonight, even
though he had been at the hospital in the wee hours of this morning in
their city at home. I had taken steps today to address the possibility
that he may need medical attention, so called a contact I had been
given at the Red Crescent Hospital, the place which had hosted the
screening and so is aware of our work. We were told to go to the ER
there, and they would have an oxygen cannister waiting for us and allow
us to use it until the baby traveled to Israel for his heart surgery.
What a blessing!
When we arrived, the head nurse met us
outside, and led us in to give Delir some oxygen. As he talked with
Delir's parents, he told us that he too was from Iraq, that the city of
Baghdad in fact had been his home. I never cease to be amazed at God's
connections for these precious families! Delir was so tired that even
though his parents reported that "he usually loves the oxygen," tonight
he cried when they began to administer it. As his mother settled him
with a bottle, his father was instructed on how to use the oxygen
bottle, and with the help of Jody from the Iraqi church in Amman,
loaded it into the van. After about a half hour, we took the family
back to the apartment so they could at last get some rest.... Delir's
mother seems exhausted.
Please pray for
this precious boy and his parents. Already they express their thanks
and gratitude for what is happening for their son, and we in turn thank
God for his vast provision of love which makes this opportunity
possible.
You may
click here to help with the cost of
Delir's surgery in Israel.
Notify
me when Delir's page is updated
at this
email:
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