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Ali's Heart Surgery - Page Two

Monday, September 29, 2008
A New Chance
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Today we visited our children in the ICU at Wolfson Medical Center, and comforted their relatives there. We had the opportunity to see Ali. The doctors told us that he's getting a bit better. 
 
We keep on praying for him and for his father, a strong man who is facing those difficulties in such a noble and humble way. Far from home and often alone, Ali's father keeps fighting for life with his child without losing the hope. He's such a good and thankful man, who appreciates every little bit of help and every silent moment shared together--smiles, hugs and nice words.
 
We ask you all to pray for them. We praise the Lord to bless them with a wonderful new year full of joy and serenity. Shana tova! [Jewish New Year greeting.]
 
Ethan adds:

The doctor said, "Yesterday we didn't think he would make it. Today we can say that he has a very real chance, especially if his fluid retention reduces and his lungs improve a bit." This bit of light sprinkled the day with optimism for everyone, including Shanaw who was also concerned about Ali. While Shanaw's aunt prayed outside (since it is the day before the end of Ramadan), we sat in the I.C.U. and thanked the Lord for mercy He has shown so far, and asked for continued healing.

More from Donna: 
 
The news as well as the attitudes from the ICU staff today were most encouraging. When we entered, Dr. Houri was attending Ali, and told us that for the first time they now feel hope that Ali has a chance. He spoke to me about this again later when I was with Shanaw and he made rounds for her case. I responded at how thankful all of us are for this, and he said they are as much or more thankful because it was very difficult for them too that Ali was so sick. I felt privileged to spend time in the ICU rejoicing and thanking God that both of these children for whom we'd interceded yesterday and last night were markedly improved today. Ali still has a long way to go, but how wonderful that with God's help, he has a new chance. Join us in thanking God as you continue to pray for Ali, and his father.


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Sunday, September 28, 2008
Emergency Late-Night Catheterization for Ali
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Ali went in for a rare, late-night catheterization tonight as doctors attempted to open up a closed artery by the placing of a stent.  This was an emergency procedure, as evidenced by the hour it was done.  Our staff at the hospital report that the procedure was successful, but Ali is still in critical condition. God's grace is needed at this hour; please continue with us in prayer for Ali and his tired and frightened father.

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Thursday
September 25, 2008

Hope Grows Along With Oxygen Levels
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I was able to see Ali today for the first time in about a week because I've had a cold and would not go into the ICU. The visit held some encouraging news as the doctors have seen a slight improvement since yesterday -- actually I was encouraged before I went into the ICU when I saw Abu Ali. He shared with me that Ali's oxygenation was at 76-77% today. As I visited him, the monitor by his bedside went as high as 79%. However it also dropped again to about 60% for a time. I spoke to the doctor on duty who explained that they have increased the dosage of a medication which is both a bronchodialator and a diuretic, and it seems to be helping. Please keep praying!
 
Abu Ali was perhaps ever-so-slightly encouraged with the rising oxygen levels, but still very tired, and aware of the long road ahead for his son. He is such a devoted father, and has been here for so long caring for his precious son. Please keep both of them in your prayers. 

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Monday, September 22, 2008
Low Oxygen Levels; Chest Closed
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Ali remains under constant observation and is still having low oxygen saturations. There appears to still be a problem with Ali's lungs making it impossible to breathe on his own. Yesterday he experienced a crisis as his oxygen dropped down to 30+ percent of normal.  Today his readings were in the mid-50s.

On the positive side, Ali’s chest was closed Sunday night, meaning doctors believe it less likely they’ll have to go back in on an emergency basis.

Prayer has been an important factor and I would ask that we continue to hold Ali up before the throne of grace. He is still in danger but with the hand of God all things are possible.


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Thursday, September 18, 2008
Your Words of Encouragement for Ali's Father
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Today, Erica and I sat outside of the ICU with Ali’s father for a few hours.  Erica had the opportunity to read all of the letters that people have sent to him via the link on this page.  He was very interested in what people had to say and overwhelmed by everyone’s interest and concern ("just about moved to tears," according to Ethan).  He is slowly catching a cold, which, if it gets worse could prevent him from seeing Ali.

All day the doctors were telling me that there was no change in Ali's condition, however as we were getting ready to leave this evening the surgeon walked by and informed us that he saw a very small improvement and that they are hoping to close his chest in two or three days if things continue to improve.  Please pray for his father’s health and continue to pray for Ali as he remains in great danger.

Yesterday three of the Iraqi parents staying in Jerusalem asked to go to the hospital to visit Ali’s father.  Once we arrived to the hospital it seemed that they would sit in silence for the entire visit, but eventually the chatter started up amongst them (mixed with a few tears) and didn’t stop until they drove away.  When I left the hospital that evening it seemed that Ali’s father’s spirits were up ever so slightly.

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Wednesday, September 17, 2008
A Matter of Waiting
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Ali’s father shared some laughs with us outside the Wolfson ICU today. He had found a postcard of a rabbi who was advertising his “mohel” services (one who performs circumcisions).  When our co-worker Ethan explained to him who the man was, everyone in earshot gave a sheepish grin and hearty chuckle. Talk of circumcision in every culture draws either very serious responses or ones of great humor. 

 Inside the ICU Ali lay quietly in his chemically induced coma.  The ventilator softly fed him oxygen.  Even as he lay there his body was fighting to accept the new physiology of his heart.  Today during lunch with the pediatric surgeon, Dr. Sasson, we received an update on his condition:  “When we began the surgery all our data told us that Ali’s body would receive his corrective heart surgery.  Still his lungs will not take blood flow needed to sustain his life.  It is just a matter of waiting, there is no surgery that we can do to correct this condition.” 

 It would seem that prayerful intervention is what is continually needed for Ali.  Please take the time to take this little boy’s life before the Lord and pray specifically that his lungs would begin receiving the needed oxygenated blood. 


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Tuesday, September 16, 2008
Ali Stable, Doctors Sound More Hopeful
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Today as I stood by Ali's bedside I once again was in awe of the amount of work, skill, technology, machines, dedicated doctors, medical staff..... it takes to make one sick little child well. As ICU head Dr. Houry explained about the catheterization he seemed confident that there was nothing that had been overlooked. He told me that Ali is doing better and that it would be possible to do another operation in several months if they decide it is necessary.

He scrubbed his hands and very carefully pulled back Ali's covering so I could see what this little man has been through. I was simply amazed at what I saw, to some degree you could see his little heart beating through its sterile covering.

What a comfort it is to know that so many of you are praying!

------------

More from Keleigh who's been staying near Ali at the hospital:

Saturday evening I took Ali and his father to the hospital.  Following our arrival Ali’s father noticed that they had a large crib in their room for Ali and a narrow fold out chair for him to sleep on.  Since Ali has slept next to his father for the past nine months, his father knew that Ali wouldn’t sleep unless they were next to each other (may seem strange in American culture, but in Arab culture this seems to be very normal).  One of the staff assistants at the hospital and I removed the crib and replaced it with a bed.  In the process we talked a bit about Ali and I was able to explain what I am doing in Israel. 

Late last night this same young girl was the one that helped move Ali from the ICU to the catheterization lab.  After delivering Ali we passed each other in the hall and she said, “He isn’t doing well.”  I responded with a blank stare.  She continued by saying, “I have worked in this hospital for only nine months and I have seen so many miracles.  Don’t worry, miracles happen.”  As she walked away I felt encouragement from the words of this Israeli girl reminding me of what God is capable of.

Today Ali seems to be doing a tiny bit better.  His oxygen remains very low, however his blood pressure has improved.  His father is managing, but every once in a while he will walk off for a while and return wiping away tears.  Over the past four months while he was staying in Jerusalem he became very devout in his Muslim faith.  Alex and I discussed briefly last night how these circumstances might shape his future beliefs for the better or worse. 

Please pray for Ali’s condition to improve and his father to know the true healer.

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Tuesday, September 16, 2008, 1:00 AM
Ali Stabilizing After Midnight
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The doctors just completed the emergency catheterization, and were planning to try inserting a stent to increase his oxygen flow which is not improving as they hoped. However what they found did not explain the problem, the stent didn't seem to offer the solution, and Ali seemed able to stabilize on his own, so they stopped with the cath. The doctors said they could not explain this, but I believe our prayers make a life and death difference. Please keep praying for Ali and his father. Keep praying for the doctors, who are attending to Ali continuously and who are doing all they can to save his life. And keep praying for the Shevet team, especially Keleigh, as we continue the ''ministry of presence'' at the hospital.


Monday
September 15, 2008

Fighting Around the Clock for Ali
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Team member Donna and myself arrived at Wolfson Medical Center in Tel Aviv at 8:30 last night.  The dark drive from Jerusalem had been silent as we pondered and prayed for the life of little Ali.

 
Ali was in surgery with Dr. Lior Sasson (pictured right) from 7:00 AM yesterday  until approximately 7:00 in the evening. This operation was the second stage for the repair of his small heart.  Almost four months have passed since his first surgery. During this time Ali’s father has waited diligently and patiently for the restoration of his son even while he has a newborn son waiting in Iraq who he has never seen.
 
A tearful staff member named Keleigh called me last night at 7:00 PM recounting the fresh words of a discouraged cardiologist named Dr. Tamir: “The surgery was very difficult, we don’t know if Ali will make it.” 
 
Keleigh was at the hospital all day enduring the long hours of the endless surgery.  Passerbys who happened into Shevet on any given day would see Ali perched on Keleigh’s lap as she went about her daily work on the computer.  Ali’s greatest crime was going to each staff member begging for treats.  His doleful brown eyes always won over our hearts.  
 
When we arrived at Wolfson we were greeted by the tear-streaked, downtrodden face of Ali's father.  No words were spoken as we shared a strong embrace and sat.  A short while later the surgeon emerged from the ICU wanting to speak to us about the surgery.
 
We entered the ICU where a host of nurses and the ICU director were all working on the small frame of Ali.  Next to Ali sat the heart and lung machine that keeps patients alive during surgery.  It was brought into the ICU as a precaution.
 
The surgeon sat down and carefully explained the salient parts of Ali’s condition: “First of all, Ali is stable.”   Ali's father's eyes brightened every so slightly at this fresh news of hope. “Part of the surgery was successful in building a bridge from one wall of his heart to the other.  When we had to close the hole in his heart though the right atria could not pump the blood into his lungs and pressure began to build.  To correct this we had to open the hole again.  This is why the surgery took so long.  Tonight is critical for Ali.  We will leave his chest open for several days in case we need to go back in.”
 
Ali's father walked over to Ali and took a long look at his first son.  There are few scenes in life as difficult as watching a father cry for the life of his child. 
 
Even now Keleigh is still at Wolfson Medical Center and plans to spend the night again. We've received late word that still tonight doctors will take Ali in for emergency catheterization as they continue working around the clock to rescue him. Please pray for the perseverance of the outstanding medical teams working on Ali, for hope for his father, strength for Keleigh and the Shevet team, and grace from our Lord. 
 
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Saturday, September 13, 2008

Ali's Final Surgery Scheduled for Sunday
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I arrived to the Shevet house around 5 PM to pick up Ali and his father and take them to the hospital.  I was surprised to find out that Ali knew we were going to the hospital and that both he and his father were anxious to leave.  As we walked out the door all of the other children and their parents were close behind saying their goodbyes.  The girls even helped Ali into the car, buckled his seatbelt and waved a final goodbye as we drove off.  It was evident that these children and their parents have become a family.


Once we arrived to the hospital Ali was noticeably very nervous.  As the nurse took his blood pressure and tested his oxygen level his usual smile was replaced by a look of worry and wonder. 



By the time Ali and his father were settled in their room Ali seemed to be more relaxed.  He was even smiling and playfully laughing a bit with the nurse.  As I was leaving I noticed that he had propped himself up on a chair and was helping himself to a meal sitting next to him.  Hopefully the food was intended for him.



Ali’s final surgery will take place tomorrow (Sunday).  Please pray that his surgery will be successful and that he will recovery quickly.

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Tuesday, September 2, 2008

The Beginning of the Next Phase for Ali
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Nearly four months after Ali’s last surgery Ali’s father was surprised this morning to suddenly hear that Ali was scheduled for a catheterization tomorrow (Wednesday).  The doctors need to have a close look at Ali’s heart in order to be able to determine the next phase of his treatment.

Ali immediately started crying when he heard that they would be going to the hospital so his father changed his story and said that they would go to the park instead.  Ali quickly jumped up and went into their bedroom and began helping his father pack their things.  A couple of months ago Ali had a fever so we took him to the hospital as a precaution.  As soon as we walked through the doors he started to cry.  It must certainly be difficult for a three-year-old child who has already suffered through one open-heart surgery to return to the place of his suffering especially once he realizes that a fun trip to the park isn’t actually on today’s agenda.

Although a catheterization is relatively painless, please pray for Ali as he re-enters the dreaded hospital.  Pray also that his upcoming surgery would take place soon so that Ali and his father can finally return home.






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Thursday, August 14, 2008

Ali's Final Surgery Scheduled for September
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Ali and his father came to
Israel over eight months ago.  Initially they stayed in Jaffa with a family there, but when that family moved they were asked to come to Jerusalem.   He and his father have made the Shevet house their temporary home.  A few days after they moved here we gave them a key and within minutes they were out the door exploring the city.  They take walks to the market daily, often acting as a guide for the newer Iraqi families.

Ali spends his days trying to keep up with the other children who are usually much older.  He loves the household cat, but unfortunately that love is not mutual.  At some point each day Ali and I make our way out to the garden behind the Shevet building in search of "Mustafa the Turtle" which the children discovered living there, and who has become a daily playmate (see picture).  Often the turtle has hidden himself so well that we are unable to find him, but when we do Ali screams with excitement.  Yesterday, the doctors confirmed that Ali is on the surgery schedule for September.








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Monday, June 16, 2008

A New Quilt for Ali
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Ali and Arina, along with their respective parents, enjoyed a time of fun, food, and fellowship at our neighborhood picnic/BBQ.  Soon after getting settled at a table with some food, Arina's mother was busy videotaping the events. And though Ali didn't venture too far from his father, he was content to sit at his feet and play with a toy truck. People from varying cultures and faiths were present, and it was a joy to see these two Iraqi families interacting and talking with others who spoke snippets of Arabic. 
 
Before leaving to return them to Shevet house at the end of the day, both Arina and Ali were presented with a small gift of handmade quilts. Arina's face lit up when she noticed that her quilt had pink ballerinas on it! And little Ali quickly snuggled up with his. 
 
It was a wonderful afternoon - a time of forging friendships and allowing God's love to be shown. Our hearts are grateful to Him for these opportunities!

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Friday, June 13, 2008

At the Dead Sea
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Ali and his father have been staying at the Shevet house in Jerusalem since Ali's release from the hospital in May. As reported earlier, they must wait until September for his second surgery. Father and son have been in Israel since the end of February, so you can imagine how they must be feeling!  Whenever possible, the Shevet team does our best to break up the monotony of the endless waiting for these children and their family members.  Today was such a day...
 
At 8:30 this morning, Hank arrived at the Shevet house to see if Ali's father wanted to spend the day at the Dead Sea with little Ali and our family. After some conversation and translation, Ali's dad quickly packed some things for both of them and we soon headed out. On arriving to one of the beach areas, imagine our surprise (and dismay!) when we discovered that the children's inground pool we planned for the kids to play in was not filled! (It only gets filled and used on Shabbat.) But that didn't deter us. We asked if there was something that could be filled with water and the staff person was kind enough to bring us a little plastic pool which Ali - after some prompting from Dad - soon found refreshing. The children's sadness of seeing an empty pool soon left when this little pool filled with cool water appeared!
 
Ali's dad also enjoyed some time of refreshment - in the Dead Sea.

I was amazed at how quietly and patiently Ali sat on a plastic chair by the Sea while his father cooled off in the water.

After Abu Ali got his share of the salty sea, we gathered round the "pool" again, relaxing on mats and blankets and sharing in a light lunch of pita bread, lunchmeat, humus, and fruit.
 
Holding Ali in my lap made me so very aware of how small and seemingly fragile he is due to his health issues. But sitting there with him, I thanked God for giving us this slice of time with him and his father, and praying that God would make the time pass quickly for father and son as they await the second surgery.
 
I marvel at Jesus' words, recorded in Acts, "It is more blessed to give than to receive." Only in His kingdom can one feel so tremendously blessed when you reach out to bless others. That's what today was all about and what a blessing it was!



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Monday, June 9, 2008

Playing at the Park
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Since his release from the hospital, Ali has been staying in Jerusalem. He has had lots of fun playing with the other children at the Shevet Achim house, and he especially enjoyed the trip to the park. Ali loved sliding, and I enjoyed watching his face glow as he enjoyed himself. It has been difficult for Ali's father, since he is the only Kurdish man at the Shevet house. Although his male influence has had a good effect on the other children, it is easy to see that he would like to be able to spend time with other men like himself.


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Tuesday, May 27, 2008

In the Children's Ward
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We'd learned just yesterday that Ali had been moved from the main ICU to the intermediate ICU, which was very good news, and we were surprised when we found him today in the children's ward. He looked a lot better, but still has a very bad cough. He was laughing some though, and much more attentive than when I saw him last a few days ago. Alex shared with Abu Ali some cards from children in the US who are praying for Ali through this time of surgery and healing, and until he can return home. The doctors say they haven't yet decided what to do about his next surgery, and we hope to find out that news in the next few days. Please keep praying for this precious little boy and his wonderful caregiving father. 




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Wednesday, May 21, 2008

The Next Step
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It has been over a week since Ali's surgery and he is doing really well.  He underwent a catheterization today and the doctors were very pleased.  They will meet sometime in the next week to discuss the next step in repairing Ali's heart.

Ali's father seems to be in good spirits despite the fact that he has a newborn child at home. Azhee's father, another Kurdish-speaking male, will be arriving to Israel soon, which will provide Ali's father with more comfort.

Please pray for the doctors as they decide the next step.

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Monday, May 12, 2008

Surgeon 'Creates' Pulmonary Artery
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Ali's mother wasn't able to accompany him to Israel because she had another infant at home who was just two months old.  This left Ali's father as the one who would make the journey with Ali to Israel.  It has been especially difficult for him because he is not allowed to stay with the other children, all of whom are accompanied by their mothers. In spite of the fact that Ali and his father have been separated from the other families, they are not without a community of support. Today when I met Ali’s father in the hospital, he was accompanied by three people from a church in Tel Aviv. One of the men, from Sudan, lives with Ali and his father and also speaks Arabic. This enabled us to have some conversation as we sat and waited for Ali to come out of surgery.
 
Ali came out of the operating room around 3:30 p.m. Due to the complex nature of the surgery, it took much longer than most operations. When Ali's father and I were allowed into the ICU, both the head surgeon and another doctor explained to Ali’s father, in Arabic, the precise nature of Ali’s condition. The good news was that the surgery was a success and Ali has a strong heart. The bad news is that Ali was born without a pulmonary artery (the artery in the heart that carries blood from the heart to the lungs). In place of this, he has many very small, tangled arteries that attempt to perform the function of the pulmonary artery. The doctors were able to use these small arteries to form one large artery. In addition to this, they inserted a shunt to direct the flow of blood. However, Ali will need another surgery in order to fully correct the problems with his heart.  Ideally, this surgery will take place in a month or two, but the doctors said it all depends on how he recovers.
 
When we left the hospital this evening another visitor had arrived for Ali’s father.  Praise God for these volunteers who are willing to come and sit with Ali’s father during this time.

Pray for Ali’s recovery. I noticed as I was leaving that he had a very high fever.  This is just the first step in Ali’s path to recovery and he will need many of your prayers in order to make it to the end.


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Sunday, May 11, 2008

Finally... Surgery Tomorrow
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Ali and his father came to Israel at the end of January and have been waiting all this time for Ali's surgery. Finally, tomorrow it will take place.

I was able to spend some time with them today at the hospital and quickly noticed that Ali's father exhibits a bit of relief, no doubt due to the upcoming operation.

Ali was his normal, outgoing self while running about the hospital chasing a balloon. He loves to play with the other children or anyone passing by.

Please pray for his surgery tomorrow.   

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Monday, March 24, 2008

Waiting for Surgery
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Ali's catheterization showed that he is a good candidate for surgery. He is waiting for his surgery to be scheduled.

Last week we invited Ali and his father for dinner at our home and we had a yummy meal cooked by an Arab lady here.


After the meal we put on the Jesus film and Ali's father watched it with great interest.
 
Since they are staying at our friend's house in Jaffa, we take them every week to Calvary Chapel in Tel Aviv. The church is helping us with supplies needed and with gas for the van, which we use to get the people to the weekly service.
 
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Wednesday, February 27, 2008

Results of Cath to Determine Operability
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It's certainly been a full week for Ali and the other children who've come to Israel to begin their journey toward a full and engaging life after surgery. Beginning at 9am each day until late afternoon, the children, their moms and the new Kurdish translator could be found anywhere from the exam rooms at the children's ward, to the Fish Room (lounge), or in the individual labs throughout the hospital.
 
Dr. Tamir and staff began charting their files, physical exams took place, and x-rays were taken.  Everyone returned the next day for echos and scheduled PPD. However, the last of these tests had to be postponed because of the priority of reexamination and of complex concerns for Ali.

Ali's condition is of great concern. Doctors requested that he return to Wolfson last Friday. After a long day of exams, he was given medication and was scheduled for another echo on Sunday, February 24th.  His current condition indicated that he would need to have a catheterization within the next couple of weeks and then a determination would be made if he is able to sustain a surgical intervention.
 
His father, obviously upset, was taken to their interim home in Jaffa where many men from the church came to be with him and encourage him to commit Ali into the care of our loving God. On Friday, Ali and his dad were taken out for the day to a famous Arab restaurant in Jaffa where everyone enjoyed the entertainment of boisterous waiters displaying their talents to a laughing audience, while we sat and ate the best "fool" (beans) in town.

Also, during our luncheon, an invitation was extended and Ali and his father attended the local congregation on Saturday morning here in Tel Aviv. They both were surrounded by the people of the fellowship, who welcomed him with outstretched arms, and a warm meal.

Late Tuesday night a call came in from Dr.Tamir's office at Wolfson Hospital asking that Ali be brought from Jaffa to the Pediatric Emergency Center. The time h
ad come for admission and preparation made for his catheterization this morning, which went very well.  With the procedure complete earlier today, Ali is resting in the children's ward tonight. Dr. Tamir will advise us tomorrow about the decision on surgery for Ali.  There are many issues surrounding this little boy's case and hard decisions will be forthcoming, so please lift him and his father in your prayers tonight. They need to feel the presence of a loving spiritual family at this critical moment in their lives.

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Wednesday, February 20, 2008
Father and Son Reach Jaffa in Quest for Life
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Two-year-old Ali arrived in Israel last night via Jordan; he is one of the few children to come from Iraq with their fathers. This calls for special housing arrangements, and we're blessed that the Olive Branch Institute in Jaffa has agreed to care for Ali and father when they are not in the hospital.

This morning we picked them up there, and together with Olive Branch staff Piot and Todd went to the hospital, where Ali suffered through a series of examinations in preparation for his heart surgery.  A chocolate bar only partly soothed the pain.


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Our name Shevet Achim is taken from the Hebrew of Psalm 133:  How good and how pleasant for
brothers to dwell together in unity... for there the LORD commanded the blessing--life forevermore.
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