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Ali's Heart Surgery

Sunday, May 3, 2009
Ali Completes His Journey
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This morning the call came through from Iraq telling us that Ali's long-expected death took place during the night.

I'm so grateful now that I was able to see him together with his family at his home in Iraq this last Tuesday, and that I can share with you now a final glimpse of God's grace and mercy in Ali's life.

It seemed little less than a miracle to walk into Ali's home in a rubble-strewn neighborhood on Tuesday and find him there with his family. When he left Israel more than two months ago Ali's doctors doubted that he could even make it home alive.

But there he was, sitting up while attached to his oxygen generator, eating, drinking, and some of the time just wrapping his arms around his father's neck:



I felt there was a peace with Ali that I'd never seen in the hospital. He was finally home with his mother and father and new baby brother. And although God in his wisdom has now allowed Ali's life to end, I have to believe that it was His lovingkindness which preserved Ali so that it could end in the way that it did.


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Sunday
March 1, 2009

Ali's Journey Begins
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Ali’s departure was tentatively scheduled for Friday morning, but as the rain poured down even the doctors were skeptical as to whether or not this was a good day for them to leave.  Ali’s father was ready and wanting to leave so the plans went forward.

We left the hospital around 6 PM.  Ali had a cozy bed for him in the back of the van where he would sleep for small increments of time.  Every half -hour or so he would ask to sit on his dad's lap so he could see outside.  There were no complaints or cries.  He was excited to be away from his bed and on to something new.

As we crossed into Jordan he enjoyed looking through the pages of his dad’s passport (above).  He showed a slight grin as he came to his picture.  I asked, “Is that Ali?” and he replied my shaking his head up and down. 

We arrived to Dirk’s home around 12 AM where a warm room awaited them.  Ali sat on a mattress on the floor while his dad tried to figure out his complex medications.  After a few minutes inside, Ali pointed to the door.  He wanted to go.  He didn’t want another bed.  Ali loves animals whether it be the turtle in the Shevet backyard or the stray cats around the hospital., they have a way of entertaining him.  So, we brought in the birdcage just outside the door.  At first Ali didn’t seem that impressed but then, suddenly one of the birds flew from one perch to the other.  Ali jumped back and looked up at me with a big smile.



We managed to get a few hours of sleep before we had to leave for the airport.  As soon as Ali woke up he asked Dirk if he could see the birds again.  When I walked in the room he was sticking his fingers in the cage trying to get them to fly.  He ate a few bites of his favorite, a peanut butter sandwich before we left for the airport.   

Once we arrived there were a few set backs in regards to which flight they would be on.  As we waited Ali asked his dad something and his father started to cry.  He managed to hold back tears while the logistics were figured out, but when the time came for them to say good-bye he couldn’t hold them back.  I asked Ali for a kiss and then we parted ways around 9 AM. 

By 3:00 PM we received word that they had made it home, Ali had seen his mother, and that he was doing ok. 

It was last April when I first met Ali and his dad.  All of the families at Shevet had a special picnic overlooking the Mediterranean Sea and Ali and his father joined us. 

I noticed right away that Ali was energetic and curious.  He left his dad’s side and wandered all over the park, climbing up hills and rocks with the other kids. 

If it wasn’t for his blue lips and fingers you wouldn’t have known that he suffered from a serious and complicated heart defect.  He was unstoppable.



The same was true the day before his first surgery.  Ali was entertained for nearly an hour with a balloon that had been given to him.  He would punch it against the wall, let it fly into the air and then jump up to grab it, or push it to the ground and use it as a soccer ball. 

Yesterday, as we waited to hear whether or not he and his father would be allowed to board their flight home Ali sat in his stroller begging me to move.  At first he was fine with going in circles around the waiting area, but then he wanted to go faster.  He hadn’t had much sleep or food yet as I pushed his stroller faster he moved quickly side to side as if he were pretending to be in a racecar.  Despite his condition, he is still that same energetic boy.

I pray that this is only the beginning of the story. Please continue to pray for Ali and his family.

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Tuesday, February 24, 2009
Ali's Departure Date Nears
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I've gotten to spend time visiting with Ali and his dad the past few days during my visits to the hospital, and find them most often strolling the hospital or the attached mall. Today when I arrived though, Ali was asleep, and the nurse reported that he had not been sleeping during the night the past few nights, so we needed to let him rest this morning.

I was looking forward to seeing Ali's father to give him a new stroller for him to take back to Iraq with him, and later in the morning had an opportunity to tell him the stroller he'd seen in the intermediate ICU was for Ali. We had an interruption to our discussion, and I had to go in a different direction, but the next time I saw Abu Ali, he was pushing Ali around in his new stroller.

According to the nurse I spoke with today, Ali is the same, not better, but thankfully not worse. He enjoyed some fries outside in the sunshine this afternoon, and seemed pleased to observe an UNO game in the waiting area when Halo and Alaa from Iraq arrived for admission.



His father however seemed to me to be more discouraged today. He is anxious to go home, and we are hoping to send them this week but are still working to gather the medications needed to go with Ali.
 
Please keep praying for this precious boy and father. It seems to me that the closer the date of departure comes, the more difficult the decision becomes for Abu Ali, since there are risks to Ali's fragile health as he travels. He so much needs both the wisdom and the comfort that come from God alone. So do the doctors and all of us who are working with Ali and his dad. Will you please pray fervently for all of these things with and for us? I know God is listening.


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Wednesday, February 18, 2009
Like A King With His Subject
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Today when I went to see Ali he had spiked an unaccounted-for fever and commenced again on potent antibiotics. However, steps are now being taken to enable him to return to Iraq in the near future.

He now has a fine navy and orange trimmed stroller to gad about in. Despite his fever, Ali enjoyed his outing in his stroller with Keleigh today and had a stern word for his disobedient teddy!

Continue to pray for this little man and all the issues facing him and his father at this time.


 

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Sunday, February 8, 2009
Hitting the Right Note
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The moment I reached Wolfson this morning Ali and his father met me as he took his daily constitutional in his wheelchair through the corridors. Ali's father asked me to arrange for his transfer back to Jordan as soon as possible, he didn't want to wait any longer.
 
I consulted with the deputy head of the ICU and Shevet leadership and they agreed that if this was what Abu Ali wanted, the process of discharge should begin. Since last Thursday Ali has been transfered from the IV medication to an oral form and when I saw him today he looked so much better. Many people have been praying and fasting for him and the Lord has been touching his body. As you will see from the photo above he so enjoyed his walks with Keleigh, and although my camera missed the exact moment, gave her a big kiss! Then he treated us to a piano concert, Ali style, and this shows his concentration and enthusiasm for music.

Please pray for this young man that the healing process will continue. Doctors are doubtful whether he will survive the travel home to Iraq, but it is his great longing to see his mother and family. Pray too for all the arrangements needed.
Thank you for your dedication and support for this little boy and may he go out with joy and be led forth with peace.

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Thursday, February 5, 2009
Ali Wants To Live
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Yesterday I got to the hospital around noon, and soon after Ali and his father set out for a walk outside. Throughout the day his father and I would take turns walking him around in his wheelchair.  As we reached a fork in our path I would ask Ali, "Which way?" and he would point in the direction that he wanted to go.  Every time his father tried to take him back to his bed, he would cry.  He wants to be outside watching people, picking flowers or watching the stray cats.  He wants to live.  His oxygen tank had to be changed three times because it ran out before Ali was ready to go back to his bed.  As I left the hospital around 5:30 PM, they were still walking around.  

Today I noticed that the medicine that the doctors say is keeping him alive has been reduced, but Ali's oxygen level is steady in the 70's.  He seems to be doing alright.  When I mentioned this to his father he responded by saying, "God is great!"   

A few days ago Simantov suggested that we set aside a day to pray and fast for Ali.  I would like to suggest for those interested that we set aside Saturday or Sunday (or both if you like) for this.  I have heard from many people around the world praying for this little boy.  I believe if we join together and ask God for a miracle, He will act.

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Sunday, February 1, 2009
A Day Out with Dad
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I managed to snatch a moment or two with Ali as he sat beside his father out in the waiting room this afternoon. He quietly sat looking up at his father's face
who sat attentive to his every expression. It is one of Ali's pleasures to get away from the intermediate ICU and mix with the few children and families sitting in the waiting area. He is looking forward to his mother's anticipated visit. Please continue to uphold this family that the Lord will work out His purposes in their lives and they will sense His love even in the pain.

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Thursday, January 29, 2009
An Emotional Week
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It has been an emotional week watching Ali's condition as it continues on like a roller coaster. Everyday that I was able to visit him, his oxygen would fall to the 40's and then bounce up to the lower 80's. On Tuesday he was able to sit up and throw a ball back and forth with me, but today he slept most of the afternoon.

He was awake for the first 15 minutes that I was there and then he rolled over to his left side like he always does when he wants to sleep, and he put out his right arm.  His father knows that that means he wants him to come close.  Ali's father then puts his head on Ali's chest and whispers in his ear until Ali falls asleep.  Today, before Ali fell asleep he put his hand down the collar of his father's shirt and tickled him.  Ali's father laughed, and returned the gesture by softly tickling Ali's neck.  Soon after that, Ali's father stood up and I was able to catch a glimpse of Ali sound asleep.



Ali's father commented that the anniversary of their arrival to Israel is quickly approaching.  He said he would wait another year in Israel if only Ali would be well.  Please continue to pray for a miracle!


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Sunday, January 25, 2009
Father In Better Spirits
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I was so thankful that Rachel (a new friend of Shevet) asked to accompany me to the hospital today as it gave me a chance to visit a few other patients during Arazoo's surgery.  Rachel's presence was such a blessing as she loved, encouraged and prayed with Arazoo's mom today.
 
I stopped by the intermediate ICU ward to see Ali and his father. What a blessing to see some of the depression had lifted from Ali's father, and the heaviness was gone from his shoulders.  Please continue to pray for Ali and his family during this difficult season of life.


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Monday, January 19, 2009
Peanut Butter Still His Favorite
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Shortly after I arrived to visit Ali this afternoon, his physical therapist came in to give Ali his daily treatment.  Even though she is a very sweet woman, Ali hates her.

Ali’s primary treatment consists of her beating on his chest followed by pressing down on his lungs.  As soon as she enters the room, he starts to cry, and sometimes he will even slap her hands away.  Today after she was finished with Ali, she came over to me and demonstrated the treatment so I would know what it felt like.  As she hit my back Ali watched in amusement.  I think he enjoyed seeing someone else poked and prodded for a change.

Once she left, Ali enjoyed a strawberry and one of his favorites, a peanut butter sandwich.  Although peanut butter is a staple for most American kids, Ali had never had peanut butter until he came to Israel.  His father was reluctant to let him eat it at first because he said it had too much fat, but Ali loved it so much, he eventually gave in.  Today was no different.  He still seemed to enjoy it.  He ate an entire sandwich and by the time he was done, he had peanut butter all over his face and fingers.

Overall, there is still no change in his condition.  His father has said that if there were the smallest chance that some surgery could save him, he would do it.  He hasn’t given up hope.  Please continue to pray!


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Sunday, January 18, 2009
Leaving With Heavy Hearts
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Today, when Justina and I visited Ali we found a very distressed little boy, being held gently by his distraught father. The nurses pointed out that all was being done that could be done. We spoke with a believing friend and they offered to come bye and visit with him later today as he is in need of someone along side in these difficult days. Please continue to believe for the Lord to touch this little boy in the way only He knows and that His peace will rest on them.

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Thursday, January 15, 2009
Little Change In Ali's Condition
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Over the last couple of days there hasn't been much change in Ali's condition.  He remains stable and in the intermediate ICU.

This afternoon we met Ali and his father outside for a home cooked lunch from the mothers in Jerusalem.  We ate together along with Azhin and her mother who were awaiting an echocardiogram.  Following Azhin's echo, I went down to visit Ali and found him sleeping.  He must have been experiencing something exciting or scary because while he was sleeping he was twitching, muttering, and moving all over.  I hoped he was in a great place away from the hospital.

I noticed that his dad was particularly discouraged today.  Please remember to pray for him in addition to your prayers of health for Ali.


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Monday, January 12, 2009
Ali Laughs Again, And Walks With Help
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Today was a busy day for Ali. When I first arrived this morning he was slowly eating breakfast with his dad. Late in the morning his physical therapist visited and they did a few exercises to help release the fluid in his lungs.

This afternoon Ali's father and I tried to entertain him with things like music, treats, and markers, but none of them really caught his attention.

Finally, I pulled out a balloon from my bag and blew it up.  Before Ali's second surgery he would always wander into the office and open the toy drawer in my desk.  He knew that he could find suckers and balloons there.  And then I would give an inflated balloon to him without tying it.  Ali would then let all of the air blow out in his face.  He loved it.  Today I did the same.  He didn't let out his loud giggle like before, but he did crack a little smile.  His dad quickly grabbed the balloon and blew it u
p.  He also didn't tie it and reached out to give it to Ali.  Just as Ali's fingers were about to touch the balloon Ali's father let it go and the balloon went flying all around the room.  This actually got Ali laughing for awhile.  It was great to see the blank stare erased for even a few seconds.

After lunch Ali's father took him for a walk.  They sat outside for awhile and ate some snacks and then joined some of the other mothers inside.  It was great to see him in the company of other children again.

As we were leaving Ali's father got him out of the wheelchair and helped him take a few steps around the waiting room.  As Ali took his first few steps in months (with the help of his dad) one of his doctors walked by and watched.  She walked off and within a few seconds returned with three or four other doctors with her.  They were impressed.

Three months ago no one thought that Ali would ever laugh, play, or walk again.  Today I was filled with hope.  If God can bring him this far, why can't we expect to see him completely healed?  Please continue to pray!


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Sunday, January 11, 2009
Is Anything Too Hard for the Lord?
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This afternoon again we looked in on Ali and found he had been transferred back to his favourite spot by the window in the intermediate ICU. He was asleep and apart from spontaneous movements he appeared to be dreaming. There was little change in his appearance since we last photographed him a few days ago (above).

Continue to pray for the Lord's purposes to be outworked in his little life and we pray for his parents, especially his mother still in Iraq. I am reminded of the word of the Lord to Jeremiah when he was in an impossible situation, "Is anything too hard for the Lord?" Let's keep lovingly holding this little man up to the grace and mercy of our Lord.

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Friday, January 9, 2009
Surprise Us Again
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Ali slept most of the afternoon in his typical manner--without anything covering him. Nurses, his father and I always try to cover him up, but within minutes of falling asleep, he slowly begins to kick off his covers.

He continues to recover from his crash on Wednesday. While I was at the hospital today, the oxygen concentration in his mask was turned down while his saturation level remained in the upper 70's.

After the doctors gave Hank and me their report yesterday, I walked away very discouraged. But I was reminded that they had said this before and Ali managed to surprise them.  I pray that that might be the case again.


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Thursday, January 8, 2009
Doctors Running Out of Answers
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Today we talked to Dr. Houry and his words to us were less than comforting. He told us that there is not much more that they can do, and that Ali will probably die. They are willing to continue his medical treatment, although the cost of the main drugs being used is quite high. In spite of  this report, Ali was extubated and continues to fight for life. One of the first things he did was ask Keleigh for water.

I want to encourage you all to keep the faith and not give up praying for only God knows what tomorrow will bring.




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Wednesday
January 7, 2009

Crisis in the Cath Lab
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Ali had been in the catheterization lab over two hours today when I was informed by a Save A Child's Heart volunteer that something had gone wrong.  I walked back down to the cath lab and waited.  An hour later the door opened and I was able to catch a glimpse of Ali.  I could only see his lower half, but he was bluer than I had ever seen him before. 

Dr. Tamir came out and explained the situation.  Once they got Ali down to the cath lab his vitals went crazy.  His blood pressure was up and down along with his heart rate and oxygen levels.  They had great difficulty stabilizing him.  In addition, the cath revealed that Ali's arteries are very stiff.  The doctors will have an official meeting to determine the next course of treatment for him, but at this point it appears as if there is nothing more they can do for him.  Another surgery to close the remaining holes in his heart doesn't seem to be a possibility.

Upon hearing the news Ali's father was put into a downward spin.  After Ali was back in the ICU it took a team of doctors several hours to stabilize him.  There primary concern seemed to be his PH level.  Ali's father came in to visit him briefly and then disappeared for the remainder of the afternoon.  His hope of having a healthy son had been shattered and it no doubt was difficult for him to handle. 

I sat with Ali for the rest of the afternoon and late into the evening and am happy to report that was very stable.  From 3:00 PM on his oxygen level was 75% of normal and his blood pressure was stable as well.  Tomorrow the doctors hope to extubate him with hopes that he will return to his pre-cath condition. 

The doctor's primary concern is that Ali has been on an expensive drug to combat his pulmonary hypertension which is not available in Iraq.  For Ali to recover enough to be able to go home he will need to be able to live without this drug. 

As Hank and I drove home this evening we both agreed that Ali needs a long time to recover and gain strength without the interruption and setbacks that surgeries and caths cause.  Ali needs a morale boost.  He needs to run and play and be a three year old boy for a time. 

Please pray that he will remain stable throughout the night and that he will be successfully extubated tomorrow.  I am reminded of Hank's words during one of Ali's most critical times..."When faith fails, loyalty prevails."  Please continue to pray!

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Monday, January 5, 2009
A Great Reunion
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When I arrived at the hospital on Sunday, I met up with Ali and his father as Ali was being transferred to the intermediate ICU.  The nurse assured me that it wasn't because of any change in his condition, but simply because there wasn't space for him before.

His bed was placed next to the window, but one of
the nurses moved him so he wouldn't be next to a critical patient.  Once Ali's father walked in and saw that Ali had been moved away from the window, he insisted that Ali be moved back.  I agreed.  As we stood discussing the matter with the nurse rays of sunshine were streaming in the window along with a warm breeze.  Both were things Ali needed after three months in the ICU.

Our reunion was great.  It seems to be difficult for Ali to show any type of emotion; however, as he sat on my lap I could see a half smile.

Because I have been gone for the last month it is easy to see the improvements in his condition.  Ali isn't talking in full sentences, but he is quick to use one or two words to indicate what he wants.  Before I left he would only point to what he wanted or push things away that he didn't want.  He seems to be much more alert.  He also seems to be stronger all around.  I brought him back a pair of shoes (that actually fit him despite what they look like in the picture), which his dad put on his feet and helped him take a few steps around the room.

Today when I visited he was even stronger than yesterday.  He enjoyed listening to some music while playing on the keyboard and devoured the chocolate marshmallow snack his dad brought for him.



His oxygen level continues to fluctuate, but it doesn't seem to go down to a critical level.

Ali is still in need of at least one more surgery to close a hole in his heart.  Wednesday he will undergo a catheterization in order for the doctors to gain a better understanding of his condition.  Following his second surgery the doctors said that there was a possibility that the remaining hole(s) could be corrected by a cath.  Please pray that this might be the case.  As Hank and I drove home from the hospital yesterday, we discussed Ali's condition.  We both agreed that Ali's morale couldn't handle another surgery any time in the near future.  His one year anniversary in Israel is quickly approaching.  Pray that an end to his long and difficult journey might be in sight.


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Friday, January 2, 2009
Triumphant Ali Leaves the ICU
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We arrived at Wolfson hospital today just in time to see Ali's Dad moving Ali on his bed into the children's ward into the same room as Wahaj and Havan. He was surrounded by balloons and toys and had a big grin on his face. It was a look of triumph.

It was so good to see this little boy take this step and it is in answer to the prayers of so many. He still has  an oxygen canula but his colour has improved. Please continue to ask the Lord for this little boy that he will be fully restored and enjoy the life of a healthy little boy.

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Tuesday, December 30, 2008
Ali Goes For a Ride
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Ali was all dressed up in a winter jacket and cap today and being wheeled around in a stroller by his dad.  Abu Ali said that his son was having one of his better days, and the ICU staff said that they could take him out of the ward for a bit of sunshine. 
 
Even though he was feeling better, he still had the same emotionless expression on his tiny face. The only time he seemed to pay attention to anything was when his father offered him ice cream on a spoon. At the sight of it, he sat straight up and opened his mouth for a big bite.
 
Ali is still a very sick little boy and has a long road to recovery ahead. Pray for the Lord to give him length of days on this earth so that he may proclaim the goodness and faithfulness of Father to future generations of Iraqis.


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Sunday, December 28, 2008
Too Sick to Open Gifts
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Today was my first visit to ICU to meet Ali and give him a few belated Christmas gifts.  When I entered the ICU, I found his father at his bedside putting an oxygen mask on his face. Ali was sitting upright in the bed, his big, beautiful brown eyes fixed on something across the room.  I greeted him with a big smile and showed the brightly wrapped gifts we had brought. His face was expressionless, only his eyes moved slightly. His father tried to coax him into looking at the toys but there was no response; he just sat and stared straight ahead. 
 
Abu Ali told me that Ali's oxygen levels had been spiking and falling for several days and the doctors still could not find the reason. He also told me that Ali kept asking for Keleigh, a Shevet volunteer who is currently in the States on holiday. "He loves Keleigh," said Abu Ali," and always asks when she will come to see him; he loves her like a mother."
 
Ali has not seen his mother since arriving in Israel over 10 months ago at the age of two years. Join us in praying for a miracle of healing in this little one's life and for a joy-filled reunion with his mother in the near future.

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Monday, December 22, 2008
Back in the ICU; the Battle Continues
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My visit to the Wolfson intensive care left me sad as I saw how very ill Ali is today. I asked the doctor and he told me they were not sure why he was so distressed but they were watching his progress very carefully. Please uphold this little boy in prayer, that the Father who knows best will touch him and restore Ali to full health and true miracle be seen by all. Ali's father is very tired and needs our prayers as he daily sees his son struggle to breathe even with oxygen supply, and his heart too is sad.
 
Ali smiled a wan smile and asked for a drink while I was there. He is a very brave little fellow. Following yesterday's report, the present setback is unexplained and is fuel for intensive believing prayer.

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Sunday, December 21, 2008
Out of the ICU for First Night of Hanukkah
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As the medical team evaluated Ali today, Dr. Houry said that they should get Ali out of the ICU and into the sun since he has no more fever. As they discussed his progress further Dr. Houry asked the team this question: "So why is he still in the ICU?  Let's move him out into the ward."

This is great news after three months in the ICU, and Ali got to celebrate with a traditional Hanukkah donut (sufganiyah) from one of the doctors. The look on his face was priceless as he started to lick the donut.



The doctor told me we would have to raise more funds because Ali is making up for lost time when it comes to eating. They said his appetite has been insatiable to say the least. They are also going to start weighing him to monitor his weight gain. We want to thank you all for your many prayers on Ali's behalf.

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Sunday, December 14, 2008
Ali's Miracle Still in Progress
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I often see Ali's father while I'm in the hospital at Wolfson, and always ask him how Ali is doing. He is usually quick with a direct answer informing us of any changes and the current situation for Ali. Today was no different, as before I had a chance to go to the ICU, Abu Ali came to see how Elaf was doing early this morning. I was sitting with Elaf and her mom as we waited for Dr. Tamir to make the final decision about her surgery today. Abu Ali said that Ali was good, but his blood pressure was going up and down. He visited with Elaf, then left the room until Wahaj came for admission a little later. He enjoyed visiting with both these babies and their mothers, and the babies both wanted to be held by Abu Ali - he is so good with all the children.

I was finally able to get to the ICU to see Ali this afternoon, and he was very sound asleep at the time. His oxygen was hovering around 80%, and he was taking a breathing treatment while I was there. Even when the oxygen mask slipped down and I moved it back up on his face a couple of times Ali didn't awaken at all. I stood with him for a little while and prayed for him, and then went to speak to Dr. Houri, the director of the ICU. He reported that they had removed the central line they'd put in recently, which we'd already been informed about, and said it is good that Ali has no infection now. Otherwise, there is nothing new. He said that we might want to ask Dr. Tamir about when it is the time to do another catheterization on Ali's heart so they will know how to go forward.
 
Please continue your prayers for Ali's healing ... he has come such a long way! As I consider the possibility of what the doctors might find during another catheterization, I cannot help but hope they find more evidence of the miracle in progress which has marked Ali's situation so far. Remember to pray for his gentle father as he lovingly cares for his son day in and day out. He is a special example to all the parents as they go through difficulties with their own children's recovery.

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Sunday
November 30, 2008
Successful Surgery - Gaining Strength
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I was able to visit Ali on Friday and immediately saw that he was doing much better.  He seemed stronger and was even eating quite a bit.  We threw a small ball back and forth a few times.  He seemed to enjoy this, however he gets tired quickly.  It is easy to rejoice in Ali's miraculous recovery and forget that he still has two holes in his heart, which remains evident by his very blue face, lips, and fingers.  
 
I was sitting close to his bed and he kept grabbing my shirt.  Eventually I asked the nurse if I could hold him in my lap.  She walked over and helped me arrange the various wires attached to Ali as I lifted him.  He put his head against my arm as he watched the nurses walk around the ICU.  One of the assistants walked over and handed Ali her phone that was playing music.  He held it in one hand while he tapped the other to the beat of the music.  Although his smile hasn't returned, he is emerging from the shell that has held him captive for the last few months.
 
At one point in the day I jokingly mentioned to his father that he needed to give him a haircut.  I came back the next day to find Ali almost bald!
 
On Saturday I tried to come up with something new for him to do so I offered him a pen.  He quickly reached up and took the cap off.  I found some paper and he started to scribble.  In between each piece of "artwork" he would take the cap off the pen and then put it back on again.  I was impressed that he had the strength and coordination to do this.
 
Early this afternoon, as Ali's father and I waited for him to come out of surgery he asked to see the pictures of Ali that were on the internet.  We sat outside of the ICU and scrolled through all of the pictures of Ali dating back to last February.  The further I scrolled down the more the tears filled his eyes.  As we finished looking at the pictures Ali came out of surgery.  Ali's father watched him pass by on his way back to the ICU and then he surprisingly disappeared for a few hours. 
 
After Ali had been back in the ICU for a while, one of 
the nurses asked where his father was.  I told her that I thought he was a little emotional following Ali's surgery today.  The nurse said that he had cried this morning as the nurses wheeled Ali back down to the operating room. 
 
A few hours went by and eventually Ali's father returned.  He seemed relieved to see that Ali was successfully extubated, strong and appeared to be in the same condition as prior to the operation. 

Please continue to pray!


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Wednesday
November 26, 2008
Extubated and Doing Better
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Three months ago Ali enjoyed doing things that most little boys like to do.  He enjoyed splashing water, kicking balls, smudging windows and letting toy trucks fly down a ramp.  



Today, after nearly three months in the Wolfson ICU he is limited to holding a little blue teddy bear and motioning with his finger that he wants water.
  
 
Although he has been extubated once again and Dr. Houry says that he is doing well, I can see in his eyes and his body the stress and strain of his last operation.
 
As I sat there this afternoon, I looked up from his bedside trying to imagine what runs through his mind.  What does he see and what does he feel?  Does he remember the days gone by and wonder, "why am I here?"
 
Keleigh adds:
 
Today I was able to sit with Ali for over an hour.  It was the first time since he has been awake that I could tell that he knew who I was. 

Like Hank, I can't help but wonder, "what is he thinking?"  Ali was once a happy, curious, and energetic little boy.  Now he sits with a blank look on his face.  I have wondered if he thinks that his suffering is some type of punishment for something he did. 

As you continue to pray for Ali's recovery, pray that his smile, curiosity and joy will return as well as his health.  


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Sunday
November 23, 2008
Re-intubated, Weaker than Before
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When I first saw Ali today in the ICU he was asleep, but totally uncovered revealing a rash on most of his fragile little body.

His father came in shortly thereafter and the tending nurse asked him to rub an ointment on his tender skin to relieve the itch. When Ali’s father started to rub the ointment, Ali awoke and started to motion for water.

The director of the ICU wasn’t around so I wasn’t able to find out why and when, but unfortunately, Ali was re-intubated and he seams to be weaker compared to the last time that I saw him.  Because Ali in intubated, drinking from a syringe was the only way his father could handle his request.

The doctor told me that he is doing a little bit better and they would try again to extubate him in the next few days.

Ali’s father is one of the most caring, loving fathers I have ever seen.  He is right there for any and every request from his sick little boy.

Jesus is the only answer for this suffering little child.  We need your prayers that as the doctors continue to treat him, Jesus would heal him.

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Monday, November 17, 2008
After Two Months Indoors, Ali Sees The Sun
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Equipped with an oxygen tank and two IV medications, accompanied by the head of the ICU, an ICU nurse, and a medical student, Ali made his way outside this afternoon for the first time in over two months!

It was around lunch time when Dr. Houri, the head of the ICU, suggested that it was time for Ali to venture outside.  He said, "I just wanted him to see the sun."  Ali's father loved the idea.  It took about 30 minutes to disconnect Ali from all of the wires and reattach him to portable devices.  With Ali's oxygen mask on tight, Ali's father carefully placed him in a stroller and they walked outside.  They passed some rose bushes just outside of the entrance and Ali's father quickly picked one for Ali and handed it to him.  A few minutes later he tried to take it out of Ali's hand as Ali pulled away and let out a soft "na" (no) in Kurdish.

We sat outside for about 10 minutes before we were told to bring him back in.  It was a great day for everyone.  Ali's father couldn't stop smiling and even put up a brief protest when it was time to go back in.  Dr. Houri was so excited, he made sure that I took pictures of this historic event in Ali's recovery.

As they placed Ali back in his bed, he continued to hold on to the rose.  He asked for water, but he no longer seems to be in such great desperation.  It was obvious that this short adventure wore him out.  After finishing his water, he put his head down and closed his eyes.  A few minutes later he opened them and softly said, "botani" (blanket).
His father quickly covered him up.


In such a short time Ali had managed to say three words (no, water, and blanket).  The doctors were very pleased by this because it serves as some indication of the neurological damage that he may or may not have suffered due to the length of his medically induced coma.

Please continue to pray!


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Sunday
November 16, 2008
Slowly Getting Stronger
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Today I spent an hour in the ICU with Ali and his father.  Ali's father was full of joy as his sons health continues to improve.  Ali's oxygen level fluctuates between 80 and 89%.  



As I spent time talking with Ali's father, Ali awoke and asked for some water and something to eat.  To my amazement, Ali's father was able to give him a drink and some small pieces of a tangerine.  Ali continued to ask for more and dad helped him little by little.  He seemed to struggle with every bite, but was determined to eat and drink.


Dr. Houry, the head of the ICU, said that Ali is a strong little boy and continues to fight to get well. The doctor's concern seemed to be focused on a very expensive drug that is being used. He said that this drug alone costs about $266 a day. Please keep praying  for Ali's continued recovery and for those who are helping to make him well.  Pray that they will not give up on this precious little child.


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Wednesday
November 12, 2008

Extubated Again; Stronger This Time
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As I walked into the ICU I was able to get a glimpse of Ali's stats.  His oxygen was in the upper 80's so I assumed he had not yet been extubated. When I approached his bed, I saw that I was wrong. They extubated him this afternoon and it appears that he is much stronger than the last time.  
 
Ali seems to be very uncomfortable and he is still begging for water. (In the picture you can see him lift his arm and point to the sink at the side of his bed.) Yesterday, after he begged me for several minutes for water, I finally got the nurse's approval, filled a sponge with water, and put it in his mouth.  A few minutes later he vomited the water along with the formula he receives via a feeding tube.

The doctors are very optimistic, always confirming that he is doing well.  Please continue to pray!


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Monday, November 10, 2008
Very Thirsty, Very Weak
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According to the doctors, Ali is continuing to improve and is doing really well.  They are going to try to wean him very slowly from the ventilator this time, in hopes that he will gain strength to breathe on his own.

While I was with him yesterday, I thought we were having some fun playing with a ball.  I would put the ball in Ali's hand and he would throw it towards the end of the bed.  After doing this a few times I saw that he had a very angry, almost tearful look on his face.  I realized that he wasn't playing, but was throwing the ball because he didn't want it.  Instead he wanted water.  It is so difficult to watch a child beg for water and not be able to give it to him.  More than any toy we put in front of his face, he wants water.  His father is able to fill a cloth with water and put it to his lips, but that is it.

I can't imagine how traumatic this must be for a three-year-old.  Ali's hands are tied down in order to prevent him from pulling out the various tubes attached to his body. He is fully conscious with two tubes running down his throat, and he is so weak that he can't sit up on his own.  Please continue to pray!


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Thursday, November 6, 2008
Ventilator Temporarily Re-Inserted
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I got to the hospital this evening to find Ali's father eating dinner by himself just outside the ICU.  With a sad look on his face, he told me that they had reinserted the ventilator this afternoon.

As I sat next to Ali in the ICU, he seemed to be sleeping pretty soundly. After about 15 minutes, his eyes suddenly shot open. He looked over at me and reached for me as if he wanted me to pick him up.  It was a sad sight to see.  He then just reached to the air continuously. He was asking for water.

The doctors said that the breathing tube will hopefully only be in for a few days.  His body was tired of having to breathe on its own and just needs to gain a little more strength before they remove the breathing tube permanently.  I did notice that, now that they have reinserted the breathing tube, his oxygen is higher than ever--around 85.

As I left, his father seemed in good spirits in spite of this.  He seems to understand that Ali is still doing really well, but the recovery process is slow. I thank God that Ali has such a patient father. There are few parents who could go through this and remain strong.  Please continue to pray for him.


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Tuesday, November 4, 2008
Thirsty, Uncomfortable When Awake
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Ali was sleeping today as I approached his bed. A few minutes after I arrived, the nurses came over and wanted to give him a bath, which quickly woke him up.  Afterwards, we sat him up and gave him water.  Even though Ali is properly hydrated, he drinks water as if he has just finished a long trek through the desert without any.  After he finishes a cup and his oxygen mask is on, he will reach for the cup, hold it in his hands and tilt the cup up on his mask trying to get another drop into his mouth.  The doctors will only allow him to have small amounts at a time, so after his first cup, we spend the next 15 minutes calming him as he begs for more.

Much to my surprise, he doesn't have the same reaction to food.  Yesterday, his father started feeding him yogurt.  He took only a couple bites before he turned his head away at the sight of the spoon.  Today, the nurses brought him 'soup'.  It looked more like a pumpkin colored paste.  Ali's father gave Ali one bite, which he swallowed with great difficulty.  Ali opened his mouth for a second bite, but this time he just couldn't swallow it.  Suddenly there was this pumpkin colored paste throughout his oxygen mask.  We cleaned it up and tried again.  Immediately Ali spit it out.  I leaned down and smelled it and his father did the same.  He then asked with a very curious and disgusted look on his face, "What is this?"  He put the lid on and turned around and threw it in the trash.  We laughed knowing that if someone tried to feed us this pumpkin colored paste, we would have the same reaction as Ali.  I told the nurses that we needed something different and they laughed too as if they never expected a child to really eat it.

Ali is continuing to improve off of the ventilator.  With an oxygen mask on, his saturation level is in the lower eighties, but he is miserable.  He sleeps most of the day, but the few hours that he is awake, he is very uncomfortable.  He can't even sit up without his father's help.  The doctors are very anxious for him to speak.  So far we have only heard soft cries.  If Ali begins to speak it will serve as another indicator regarding the neurological damage that Ali may have suffered because he was under anesthetic for such a long period of time.

It has been very difficult over the past month and a half to watch Ali lie  unconscious and fight for his life, but it is even more difficult to watch him now that he is aware of his suffering.  Please continue to pray!


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Sunday, November 2, 2008
Ali Successfully Extubated Today
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As I opened the door to the ICU this evening, the doctor on duty immediately stopped me and gave me a brief warning.  He said that they had extubated Ali today and because of this he is very sensitive.  He asked me to not to touch him or try and wake him.  However, as soon as I approached his bed, his father whispered in his ear that I was there and his eyes began to flutter open. 
 
He remains in a critical state.  He has a mask strapped to his face that helps with his oxygen level, but if he doesn't remain stable there is fear that they may have to reinsert the oxygen tube. 
 
Once I heard that he was extubated, I was hoping to find Ali in a more conscious state, but he still seems to be heavily sedated and has a hard time following any movement.  I have also noticed that he has lost a lot of weight.  I can wrap my thumb and index finger around his thigh.  Most of the muscle in his legs have deteriorated over the last month and a half.  When Ali does seem to wake up he immediately begins to pull at all of the numerous tubes attached to him. 
 
The long road to recovery has only just begun for Ali.  Please continue to pray.

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Sunday, October 26, 2008
Ali's Eyes Open and Following Movement
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When we got to the hospital we went to the ICU and Ali wasn't there.  We found him in the intermediate ICU.  They were adding a sprinkler system to the ICU, so all patients had been temporarily moved.

Alex was able to speak with the doctors and they reported that Ali is slowly getting better.  They thought that Ali may be blind or deaf because he was sedated for so long, but they found out that both his eyes and ears are fine.  The doctors are still unsure whether or not he has neurological damage.

Ali was previously on 10 medications and they have been reduced to four.  Last night his oxygen level went down, but has since come back up and remains in the mid-seventies. 

 

He is now moving his eyes and following movement, instead of staring straight ahead, and he seems to be very alert.  His dad was holding a blue bear and Ali reached up and grabbed it and shook it around.  Overall he looks so much better.  He looks like Ali before his surgery.

We want to thank everyone for all of their prayers, because God hears them and has answered.  This has been very encouraging for his father.  Ali is a miracle in progress.  Pray that he continues to get better.


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Wednesday, October 22, 2008
Looking Like Himself Again
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When I walked into the ICU today Ali was laying on his side snoring. I tried to talk to him a little, but he seemed to be pretty sound asleep. About 20 minutes later the medical staff gathered around him to discuss his case. With the sound of so many people around him, Ali’s eyes quickly popped open and stayed open until the doctors left. The overall report was that he is still improving and that the doctors are happy with his progress so far.

Today for the first time since his surgery Ali seemed to me to look like himself.  Most of his swelling has gone down with the exception for his abdomen. Ali was more alert today than before. He was even able to follow some of my movements.  This is a positive improvement.

However, as they reduce his medications, Ali becomes more aware of what is going on.  When he is awake he tries to gag every few minutes because of the breathing tube that runs down his throat.  His father said this morning he woke up and one of his hands was free and he managed to disconnect one of the tubes connected to his stomach.


After I left Ali, I joined his father, Sara’s father and Sara in the ward.  When I walked into the room Ali’s father was trying to convince Sara to eat something.  Erica was with me and we both looked at him with concern. Erica then told him that he needs to take his own advice. Ali’s father wasn’t a large man to begin with, but he has begun to look too skinny. He told us that his heart is heavy so he can’t eat a lot. He said that once Ali is out of the ICU he will eat a big meal.

Ali’s father has regained hope.  Please pray that God will be glorified in the life of Ali.

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Sunday, October 19, 2008
Slow, but Steady Improvements
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Yesterday when I saw Ali he wasn't as alert as he had been the day before.  I thought that maybe he had been awake earlier in the day and had fallen back to sleep.  However, his father said that he hadn't really opened his eyes much all day.  Today things were different.  When I walked into the ICU his eyes were closed.  But as soon as I approached his bed and touched his hand, Ali opened his eyes and kept them open for most of the afternoon.  Much of the swelling in his feet, legs, and hands has gone down.  His fingers look like wrinkled prunes, even in color.  His skin was stretched so much when he was swollen that there is too much now.

The doctor told us that every day they are continuing to see improvement as they reduce Ali's medication.  Occasionally, when Ali's eyes are open, he seems to choke a bit on the oxygen tube than runs down his throat.  His father has noticed this and asked when it would be possible to take the tube out.  The doctor said he still isn't strong enough to breath on his own and continues to retain a lot of fluid.  They would like to see his breathing become a bit stronger and the fluid to reduce significantly before they consider removing the breathing tube.

As I was with Ali today I remembered my visit with Alaa a few weeks ago.  Alaa had only received food by a tube running up her nose and down her throat for several weeks.  Despite the fact that she was properly nourished, she had a hunger for real food.  This hunger was so great that she actually tried to eat her fingers.  As I watched Ali I thought that he might be experiencing something similar to Alaa.  He continually bites his lower lip, which has caused his lips to be severely dry.  Despite his efforts Ali was unable to bite his lower lip this afternoon because they were so dry they stuck together.  Ali's father saw this and gently pulled them apart.  He then used a cloth to put some water on his lips.  Ali began to turn his lips in so his tongue could taste the water.  His father pulled some chap stick out of his pocket and applied it to Ali's lips.  Ali seemed to enjoy the taste of that as well.

Although Ali remains in critical condition, every day we are encouraged to hear that he continues to improve.  It looks as if the long road to recovery may have begun for Ali.  Please continue to pray!


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Friday, October 17, 2008
Opening His Eyes and Trying to Speak
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When I arrived at the hospital today, Ali’s father was visiting with Kale and her mother.  We all sat together while the nurses took a couple of final stitches out of Kale, and then Ali’s father and I walked down to see Ali while Kale and her mother prepared to return to Jerusalem.

When we walked into the ICU it was immediately obvious that Ali was doing better. Much of his swelling has gone down although his lips, toes, and fingers remain blue. Ali’s father put his hand on Ali’s forehead and leaned in towards Ali and began talking to him. Immediately Ali’s eyes slowly began to open. The nurse told us that every time his father talks to him his heart rate goes up signifying that Ali hears him. When I saw Ali respond to his father's words, I started to cry. At that point, the doctor on duty came over and asked me why I was crying. She said, “You have no reason to cry. This child has improved so much”. For the last four weeks every time I entered the ICU, the only response I would get from the doctors was that there was no change in Ali’s condition, but today things were different. Today the doctor’s words suggested that many prayers from around the world were being answered.

Later on, as Ali’s father and I sat by his bed, his father slowly waved his hand in front of Ali’s eyes trying to get Ali to follow the motion, but Ali just stared straight ahead.  However, when we put our hands close to his eyes he responds by blinking and a couple times he would move his lips as if he wanted to respond to his father’s voice.  I was holding Ali’s hand as his father was talking to him and every once in awhile I would feel him moving his fingers.  He remains heavily sedated, but the medical staff has started to wean him from some of these medications.

Ali is a very active child.  Even with his heart problem he managed to run around the Shevet house all day always looking for a ball to throw, a balloon to play with or for a new adventure with the other, older kids at the house.  Following his first surgery the nurses had to tie his arms and legs down because he was too active and refused to wear his oxygen mask.  His recovery would be extremely difficult for any child, but I foresee it being especially difficult for him.

Please continue to pray.  Ali remains in critical condition.   Pray that he will continue to improve and that he would respond well as his medications are reduced. Our prayers have only begun to be answered. 


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Thursday, October 16, 2008
Unexpected Signs of Recovery
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As I entered the ICU a team of eight doctors and nurses were gathering around Ali's bed to discuss his last 24 hours of recovery. I was very surprised when they spoke in English so I could understand most of the interaction and dialogue.

The compassion and professionalism--not to mention the intelligence by which they spoke--was astonishing to witness first hand. As they discussed Ali's past and present conditions, and the treatments, procedures and tests he has undergone, I heard the words, "For some bizarre reason it's all moving in the right direction."

There is less treatment for hypertension and Ali is stable, his need for oxygen is reduced and his lungs are looking better, and the oxygen saturation in his blood has risen to 78-79 % of normal. They even discussed the possibility of letting him wake up a little bit and to move around to see how he will respond in his current condition. This to say the least is all really good news! In the words of Dr. Houri, "It must be miracle time." We are thanking God for his mercy and your faithful prayers as we begin to see the first signs of new hope.


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Tuesday, October 14, 2008
Ever So Slight Improvement
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Tonight as I entered the ICU, there was a tending nurse doing some routine care on Ali.

When the nurse was finished, I asked the doctor how Ali was doing at this moment in time. He said that in many areas of recovery, Ali is not doing well, but also that there is an ever so slight improvement day by day.

If they can get him stable enough, they will do a CT scan to check a spot in his lungs that has not responded to any of their treatments. The doctor also told me that Ali is still in critical condition, and they are doing all that they can possibly do.

When faith fails, loyalty prevails. Please keep praying!

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Saturday, October 11, 2008
Ali Hanging On in the ICU
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During yesterday's trip to Wolfson I wanted to have some time specifically to sit with Ali. While his father was visiting with the other families I went to the ICU to visit Ali. I sat by his bed and prayed for a little while, and  afterwards spoke with one of the nurses who attends him,  asking if there had been any change in Ali's condition since our last visit (before Yom Kippur). She said first that there was no change, but then she said that he'd had a chest x-ray yesterday, and it showed no fluid in his lungs. This, she said, is an improvement, but everything else is the same. His oxygen level hovered around 73% during my visit. The ICU director Dr. Houri was not available to speak with while I was there, so I didn't get to ask him for further specifics. I was encouraged that there was no fluid in Ali's lungs, and he seemed to look a little less swollen from fluid in his mid-section, but otherwise was still quite swollen.
 
His father came to the room of Shanaw and Kale after we arrived there, and I noted a look on his face that I had not seen before, a rather disoriented look. I was concerned for him for a few minutes, but then he began to visit with us all, and seemed himself. I realized he'd probably just awakened before coming down the hall to see his friends. Even in this prolonged and exhausting process, Abu Ali is very gracious at comforting the other children before and after their surgeries, and seeing them return to the Shevet house as he continues to wait at the hospital with his son. It is hard to imagine just how he really feels ,and how he continues to keep going after all these many months.
 
Please keep believing with us for the miracle which the doctors say Ali needs. They encourage us to pray, knowing we believe in miracles. Let us go before God with our requests and see what He will do.

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Wednesday, October 8, 2008
Ali's Condition is Critical
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ICU director Dr. Houri told us that Ali's body is getting tired and that his kidneys are beginning to shut down.  He is so swollen that he looks like a football player in uniform, but without the uniform.  Even his head appears to be severely swollen.  One of the doctors explained that his blood isn't clotting properly so there is some type of internal bleeding.  

Mary Dailey adds:
Little Ali really needs your prayers and his father too. He is in critical condition and he needs a miracle. This is one little boy we must not forget. When everything seems to fail and doctors and man and finances can't help, who can we turn to? GOD!!!!  God hears the broken hearted, can you imagine how broken hearted his father feels? Let's hold him up in prayer and pray for a miracle. After all that's what a miracle is, something that no one else can do but God and He is the miracle maker. Thank you all for all your prayers.

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Sunday, October 5, 2008
Ali's Father Exhausted by Bedside Vigil
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The visit with Ali today was like most of our visits lately. There is basically no change in his condition, and his father is waiting inside or outside the ICU hoping and praying his son will improve. Today however Abu Ali surprised me when he asked if he could come back to the house in Jerusalem tonight to rest. I told him I would check with Dr. Houri in the ICU to be sure it was ok for him to leave for the night. Dr. Houri did not hesitate to tell me that he thought this was a good idea, because they knew he was exhausted and that it was so very hard for him. He said Ali's condition is unpredictable, and could change at any time without warning, that they are doing all they can, and why not let him get some rest 'at home.' So Abu Ali accompanied me back to Jerusalem for some much needed rest and the company of his friend Abu Sara. He will accompany Sara and her father back to the hospital tomorrow when they go for Sara's admission for surgery on Tuesday morning. 
 
Please do not give up praying for a miracle for Ali. We serve a living God who can bring Life into this extremely difficult case. Pray for his father to come to know the reality of our Father as He really is, in all His fullness.

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Saturday, October 4, 2008
A Difficult Night, A Little Better
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Yesterday I had another visit with Ali and his dad at Wolfson. I was encouraged to find out that Ali was a little better, but this was in contrast to the fact that he had had another very difficult night. To hear the doctors say he was a tiny bit better was the only way I would have known that Ali was indeed improved, for his appearance made me think otherwise. It is for this reason that I did not feel it appropriate to photograph him yesterday. Even though he is on diuretics, they are not able to draw off all the fluid in his body, so he is very swollen at this time. He had been positioned on his stomach for several days until yesterday, when he was returned to lying on his back. Because of his poor circulation, his skin was somewhat discolored (temporarily) giving his midsection a bruised look. The doctors said his problem is with his lungs, and complications from how long he has been on the respirator.
 
When we arrived, we did not see Abu Ali, but he came into the room not too long afterwards. He walked quietly to his son's bedside and stood for a little while and then settled himself in the chair by the bed. Mary and I had already gone to pray for Ali, and walked back over to see his father. He is concerned with the swelling as you can imagine. He is very tired. As I visited with Shanaw and Sidqi, also in the ICU, I continued to watch Abu Ali. I felt the Lord would have me go to him and tell him what a good father he is. This seemed to affect him deeply, as it did me. I pray it was some small encouragement to him.
 
Please keep praying for Ali and his father, along with the medical staff. The staff is working tirelessly at Ali's side to do what is required medically for his healing. His father is 'there for him' as a devoted, gentle and loving parent should be. And we are seeking to continue standing in the gap for them, believing God for the life of Ali. Please continue praying and believing with us.




Tuesday
September 30, 2008

Enduring With Ali
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As I entered the ICU I noticed that little Ali was getting an x-ray of his chest. The doctor said that they were using this to see what is happening in his chest cavity. As I looked at Ali, I wondered how much his little body could endure. When I asked the doctor on duty how he was doing, she said that he is not doing well at this moment in time.



As I stood there, Ali's father came in to his son's bedside and just stared at him for a few minutes, and turned around and walked out.



How painful this is we may never know, but for now we pray and hope in the God of miracles and the one who said, "I am the resurrection and the life." Every part of me screams, "I believe, but help me with my unbelief!"


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Our name Shevet Achim is taken from the Hebrew of Psalm 133:  How good and how pleasant for
brothers to dwell together in unity... for there the LORD commanded the blessing--life forevermore.
© 2008 Shevet Achim